In April, I was contacted by Chicago Hands & Voices along with one of our support group members and asked to be on a conference call with families who have children with Microtia and Atresia. Our conference call took place on April 18, 2011 and lasted for an hour and a half. I am always happy to help!
Attending a Local Microtia Clinic at Children’s Hospital Colorado…
In April 2011, I attended the “new” Microtia Clinic that Children’s Hospital Colorado now organizes. At this clinic, I was able to meet with Dr. Peggy Kelly, a Rib Graft surgeon and also Barbara Lillo who is an anaplastologist. I not only was able to physically touch and see some prosthetic ear models, but I had some of my questions answered as well. Barb’s father happens to be the “father of anaplastology” as he coined the term, anaplastology as we know it today. Following the microtia clinic, I waited outside of the clinic for an additional 2.5 hours hoping to catch other Microtia and Atresia families on their way out in hopes of telling them about the summer picnic for M/A families that was planning on hosting during the summer. Two of the three families I spoke with attended our summer picnic. 🙂
I Contact Oticon Medical About Our Support Group…
On February 2, 2011, I contact Oticon Medical to share with them how our support group is a helpful resource for individuals with Microtia and Atresia and who have hearing loss. On this day I had an hour and a half conversation with Oticon’s Vice President of Marketing explaining the little bit of awareness Microtia and Atresia has along with getting a list of questions answered that I had gathered from our support group members.
Meeting With Sophono…
In January of 2011, I have a meeting with the Marketing Manager, the District Sales Manager, and the Vice President of Business Development for Sophono to discuss the newly released Alpha 1 system. We also discuss the lack of awareness about Microtia and Atresia.
A Continued Helpful Resource at Surgeon Offices…
In January of 2011, Dr. Arturo Bonilla recognizes our support group as a helpful resource and begins telling his patients about our support group.
Asked to be a Board of Director Member for the Hands & Voices Organization…
In January of 2011, I become a member of the Board of Directors for the Hands & Voices Organization.
Another Surgeon Office Recognizes Our Support Group as a Helpful Resource…
In January of 2011, Dr. Burt Brent’s office recognizes our support group as a helpful resource and agrees to let patients know about our support group.
My First Article is Published…
In January of 2011, my first article is published in the 2011 Winter Issue of the National news letter, “The Communicator,” through the Hands & Voices Organization (www.handsandvoices.org). My article is called: Falling Through The Cracks With Microtia/Atresia and can be accessed under this website’s “About” section under “Our Story” and also at the following link: http://www.handsandvoices.org/articles/early_intervention/V14-2_cracks.htm
Also, shortly after this article was published I received many e-mails from audiology students letting me know that their professors had asked them to read my article as a class assignment (from various states). I also received an e-mail from Linda Cox, a nationally renown audiologist in Florida letting me know that she would like to share our support group with her patients and colleagues and also have them add my article to the news letter she organizes.
Our Support Group is Recognized as a Helpful Resource in Another Surgeon Office…
In December of 2010, our support group is acknowledged by Dr. Thomas Romo and his staff as a helpful resource for families with Microtia and Atresia.
Our Support Group is Being Utilized as a Helpful Resource for Military Families…
In December of 2010, I receive an e-mail from a US military counselor asking if she could utilize our support group website as a means of educating US Military families stationed in Guam so they could know what options are available regarding Microtia and missing ears in general.