OTICON Medical Sponsors Microtia and Atresia Family Summer Picnic in Toronto, Canada!

I would like to thank OTICON MEDICAL for sponsoring our 1st Microtia and Atresia Family Summer Picnic in Toronto through Ear Community and the Microtia and Atresia Support Group.  I am honored and thankful for your support and in helping me bring together families with children and adults who have Microtia/Atresia, Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins.  Thank you for your kindness and compassion in helping bring families together and in helping educate them about hearing loss.

Sincerely,
Melissa Tumblin
Founder of Ear Community and the Microtia and Atresia Support Group

Ear Community From the Heart, an article published in the Broomfield Enterprise today

Hello Everyone,

This morning, Sunday March 18th, 2012, a very nice story went out in the Sunday Morning Broomfield Enterprise news paper for our home community.  Joe Rubino (Broomfield Enterprise Reporter) did a wonderful job relaying my feelings and points regarding helping promote public awareness about Microtia and Atresia and how the Ear Community website can help many families and individuals across the world learn more about Microtia/Atresia and hearing loss.

http://www.broomfieldenterprise.com/ci_20191221/broomfield-moms-ear-community-comes-from-heart?IADID=Search-www.broomfieldenterprise.com-www.broomfieldenterprise.com

Thank you!

Melissa

Microtia and Atresia Global Conference Call on Thursday, March 8th, 2012…call in on 1-866-613-5223 at 4:30pm MST

Hello Everyone!

On Thursday, March 8th at 4:30pm Mountain Standard Time (6:30pm Eastern Standard Time) for American and Canadian time zones, I will be hosting a global conference call to discuss Microtia and Atresia through the AboutFace Organization in Canada.  Anyone around the world is welcome to join in on this call if you can dial into a 1-866 number.  This call is FREE to everyone and is sponsored by the wonderful AboutFace Organization.  We will touch on Microtia and Atresia in general, including discussing dealing with public stares and comments about our children, raising our children with self confidence, etc…  Families who have children with additional syndromes/conditions are of course welcome on the call as we all share in similar experiences, so please join us even if your child does not have Microtia and Atresia.  The call will be approximately 1 hour long.

Directions for joining the conference call are below:

Conference Call Dial In Numbers: 1-866-613-5223 or 1-416-204-9354 (direct in Canada)

 

Conference Access Code: 1263325

How Participants Join the Conference Call:

 

  1. Dial the “conference dial in number”
  2. When prompted, enter the “conference access code”, followed by the “#”

By pressing *6 you will be able to MUTE your line to cut out any extra background noise, by pressing *6 again will allow you to speak and unMUTE your line.

By pressing *0 will put you in touch with the conference call operator for help

I wish to thank the AboutFace Organization for inviting me to host this conference call and for allowing this call to be a global call for everyone.

Thank you and looking forward to speaking with everyone this Thursday!

Melissa Tumblin

Ear Community is Already Helping Families…

The following “thank you” was posted to our support group wall on Friday, February 17, 2012 by one of our support group members:
“My daughter is 3 1/2years old and for the first time today I feel like we have direction and are getting somewhere with her microtia and atresia. This is all thanks to this group and Ear Community. Melissa, thank you for all the long hours and hard work you put into this. Today Sophia was fitted for a soft band Baha which we weren’t informed was an option until I read about it on here. I was also able to get in touch with a lady at Shriners Hospital in Chicago who made us feel very hopeful about having medpor surgery done which again I did not know about medpor until visiting Ear Community. And, to top it all off, we had the pleasure of having met a lilttle girl with artesia through this site. Jennifer Barr and Melanie have been a blessing!!
With a very thankful heart!”
Melissa Parish Shemanski
Thanks for sharing your experience with all of us Melissa.
Sincerely,
Melissa Tumblin

Continued Coverage Following the Launch of EarCommunity.org

Hello Everyone!
On Wednesday, February 1, 2012 the new EarCommunity.org website launched and on Wednesday, February 8, 2012 the press release went out announcing the launch of EarCommunity.org Below are just some of the news wire resources who announced Ear Community:
Yahoo Finance:
Link no longer available, but may be archived.

Market Watch:
http://www.marketwatch.com/story/earcommunitycom-is-first-to-offer-support-and-resources-for-individuals-and-families-living-with-microtia-and-aural-atresia-2012-02-08

Street Insider:
http://www.streetinsider.com/Press+Releases/EarCommunity.org+Is+First+to+Offer+Support+and+Resources+for+Individuals+and+Families+Living+with+Microtia+and+Aural+Atresia/7149394.html

Bradenton Herold:
Link no longer available, but may be archived.

Spin Shell (Japan):
Link no longer available, but may be archived.

Hearing Review:
http://www.hearingreview.com/2012/02/earcommunity-com-launched-to-support-people-with-microtia-and-their-families/

AudiologyOnline:
http://www.audiologyonline.com/news/news_detail.asp?news_id=5047

Advance for Practice Management:
http://audiology.advanceweb.com/News/News-Watch/New-Website-on-Microtia-and-Aural-Atresia.aspx

As of 2/16/2012, EarCommunity.org has had 2,120 visits to our website with 9,281 page views in just the first 15 days. If you look at our “global” map, you will see how many are utilizing EarCommunity.org across the world already.

Thanks so much!
Melissa and Ally (RMA/almost 2.5 years old)
Founders of Ear Community and the Microtia and Atresia Support Group on Facebook

The Small Wonders Foundation Recognizes the Ear Community Website…

Following the announcement of the press release for Ear Community, the Small Wonders Foundation recognizes Ear Community by announcing us on their Facebook page.  The Small Wonders Foundation was founded by a group of parents in hopes of helping other children receive surgery who could not afford it. This group of exceptionally wonderful parents have children or loved ones themselves that needed surgery. When recognizing the talented surgical skills of Dr. John Reinisch, they decided to found the Small Wonders Foundation as a way of giving back to families and helping with surgeries through Dr. Reinisch. This group of parents is amazing and I want everyone to know these parents along with the help of Dr. John Reinisch (a highly recognized and world renown pediatric plastic surgeon and the pioneer of the Medpor surgical technique in ear reconstructive surgery) are the amazing people behind the Small Wonders Foundation.  Thank you for all that you do!

Dr. Thomas Romo, Founder of the Little Baby Face Foundation, Recognizes Ear Community

Following the announcement of the Ear Community press release, Dr. Thomas Romo, Founder of the Little Baby Face Foundation recognizes the Ear Community website by announcing it on support groups and in his own blog on his website.

Press Release for Ear Community

Hello Everyone,
I am very proud to say that the press release went out today (Tuesday, February 8, 2012) at 1PM EST for our new website www.EarCommunity.org in my efforts of helping promote public and educational awareness about Microtia/Atresia.  The press release was picked up by many business searches including Yahoo Finance, Reuters, Street Insider, Ameritrade, Spin Shell.TV (which is a Japanese search), Market Watch, Bradenton Herold, and many more (1110 results to be exact although some are bogus). In addition to the above mentioned searches, the press release also went out to “all” hearing journals.  I am very happy about this and very pleased. Also, since our website launched on Feb. 1st, Google and Yahoo have been indexing our site to make it more available in searches and so far we have had 1,164 visits to the site and 5,488 page views as since the launch of February 1st.  Below are just some of the links where our press release was announced:

Audiology Online:
http://www.audiologyonline.com/releases/earcommunity-com-first-to-offer-1967

Market Watch:
http://www.marketwatch.com/story/earcommunitycom-is-first-to-offer-support-and-resources-for-individuals-and-families-living-with-microtia-and-aural-atresia-2012-02-08

Street Insider:
http://www.streetinsider.com/Press+Releases/EarCommunity.org+Is+First+to+Offer+Support+and+Resources+for+Individuals+and+Families+Living+with+Microtia+and+Aural+Atresia/7149394.html

Bradenton Herold:
http://www.bradenton.com/2012/02/08/3858016/earcommunitycom-is-first-to-offer.html

Spin Shell (Japan):
http://spinshell.tv/news/view/58346/earcommunity_com_is_first_to_offer_support_and_resources

Thanks!
Melissa and Ally (RMA/almost 2.5 years old) 🙂
Founders of Ear Community and the Microtia and Atresia Support Group on Facebook

Our New Website, Ear Community Launches…

I am pleased to announce that on February 1st, 2012 my new global website called, Ear Community (www.EarCommunity.org) launched.  The Ear Community website is a labor of love for me as my daughter, Ally, was born with Microtia and Atresia.  This website contains everything one needs to know about Microtia and Atresia while touching on associated syndromes and conditions such as Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins.  Our new website contains over 130 pages of emotional support, surgical options, hearing loss technology options, and a forum to help connect families across the globe and in your own community.  The website is available to be translated into 48 different languages and contains hundreds of helpful photos.  I founded Ear Community in order to promote educational awareness about Microtia and Atresia, help encourage advocacy, and help bring families together around the world.  The first support group that I founded on May 20, 2010, called the “Microtia and Atresia Support Group” has over 2,000 members from all over the world.  Of these members, in addition to individuals and families born with Microtia and Atresia (including Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins), our members also include surgeons, doctors, ENTs, audiologists, audiology students, therapists, early intervention program providers, nurses, teachers, members from schools for the deaf and blind, and major organizations such as the Hearing Loss Association of America, the House Research Institute, AudiologyOnline, the Educational Audiology Association, Oticon Medical, Sophono, Cochlear, and many more.  Within the first two days of our launch, Ear Community had over 500 visitors view our new website and over 2,200 pages were viewed.  We are off to a wonderful start everyone!  Thank you for your support and I hope you enjoy and benefit from our new global website, www.EarCommunity.org

Melissa and Family

Our Support Group Reaches More Early Intervention Therapists…

On January 27, 2012, I received a call from an Early Intervention service provider called Chatter Pillar Kids in Denver asking to attend our summer picnic scheduled for July 21st and also inquiring about our group’s new website, Ear Community.  Chatter Pillar Kids is an ideal organization as they provide speech, occupational, and physical therapy including pediatric counseling and psychologists and helpful resources for hearing loss and much, much more!  Thank you ChatterPillarKids for embracing our support group and new website!  http://www.Chatterpillarkids.com

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