Following the announcement of the press release for Ear Community, the Small Wonders Foundation recognizes Ear Community by announcing us on their Facebook page. The Small Wonders Foundation was founded by a group of parents in hopes of helping other children receive surgery who could not afford it. This group of exceptionally wonderful parents have children or loved ones themselves that needed surgery. When recognizing the talented surgical skills of Dr. John Reinisch, they decided to found the Small Wonders Foundation as a way of giving back to families and helping with surgeries through Dr. Reinisch. This group of parents is amazing and I want everyone to know these parents along with the help of Dr. John Reinisch (a highly recognized and world renown pediatric plastic surgeon and the pioneer of the Medpor surgical technique in ear reconstructive surgery) are the amazing people behind the Small Wonders Foundation. Thank you for all that you do!
The Small Wonders Foundation Recognizes the Ear Community Website…
Dr. Thomas Romo, Founder of the Little Baby Face Foundation, Recognizes Ear Community
Following the announcement of the Ear Community press release, Dr. Thomas Romo, Founder of the Little Baby Face Foundation recognizes the Ear Community website by announcing it on support groups and in his own blog on his website.
Press Release for Ear Community
Hello Everyone,
I am very proud to say that the press release went out today (Tuesday, February 8, 2012) at 1PM EST for our new website www.EarCommunity.org in my efforts of helping promote public and educational awareness about Microtia/Atresia. The press release was picked up by many business searches including Yahoo Finance, Reuters, Street Insider, Ameritrade, Spin Shell.TV (which is a Japanese search), Market Watch, Bradenton Herold, and many more (1110 results to be exact although some are bogus). In addition to the above mentioned searches, the press release also went out to “all” hearing journals. I am very happy about this and very pleased. Also, since our website launched on Feb. 1st, Google and Yahoo have been indexing our site to make it more available in searches and so far we have had 1,164 visits to the site and 5,488 page views as since the launch of February 1st. Below are just some of the links where our press release was announced:
Audiology Online:
http://www.audiologyonline.com/releases/earcommunity-com-first-to-offer-1967
Market Watch:
http://www.marketwatch.com/
Street Insider:
http://www.streetinsider.com/
Bradenton Herold:
http://www.bradenton.com/2012/
Spin Shell (Japan):
http://spinshell.tv/news/view/
Thanks!
Melissa and Ally (RMA/almost 2.5 years old) 🙂
Founders of Ear Community and the Microtia and Atresia Support Group on Facebook
Our New Website, Ear Community Launches…
I am pleased to announce that on February 1st, 2012 my new global website called, Ear Community (www.EarCommunity.org) launched. The Ear Community website is a labor of love for me as my daughter, Ally, was born with Microtia and Atresia. This website contains everything one needs to know about Microtia and Atresia while touching on associated syndromes and conditions such as Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins. Our new website contains over 130 pages of emotional support, surgical options, hearing loss technology options, and a forum to help connect families across the globe and in your own community. The website is available to be translated into 48 different languages and contains hundreds of helpful photos. I founded Ear Community in order to promote educational awareness about Microtia and Atresia, help encourage advocacy, and help bring families together around the world. The first support group that I founded on May 20, 2010, called the “Microtia and Atresia Support Group” has over 2,000 members from all over the world. Of these members, in addition to individuals and families born with Microtia and Atresia (including Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins), our members also include surgeons, doctors, ENTs, audiologists, audiology students, therapists, early intervention program providers, nurses, teachers, members from schools for the deaf and blind, and major organizations such as the Hearing Loss Association of America, the House Research Institute, AudiologyOnline, the Educational Audiology Association, Oticon Medical, Sophono, Cochlear, and many more. Within the first two days of our launch, Ear Community had over 500 visitors view our new website and over 2,200 pages were viewed. We are off to a wonderful start everyone! Thank you for your support and I hope you enjoy and benefit from our new global website, www.EarCommunity.org
Melissa and Family
Our Support Group Reaches More Early Intervention Therapists…
On January 27, 2012, I received a call from an Early Intervention service provider called Chatter Pillar Kids in Denver asking to attend our summer picnic scheduled for July 21st and also inquiring about our group’s new website, Ear Community. Chatter Pillar Kids is an ideal organization as they provide speech, occupational, and physical therapy including pediatric counseling and psychologists and helpful resources for hearing loss and much, much more! Thank you ChatterPillarKids for embracing our support group and new website! http://www.Chatterpillarkids.com
More Interest for Our Support Group Through Helpful Resources and More Parent Advocates…
On January 20, 2012, I was asked by a researcher and her committee of parent advocates if our new website and support group could be included in a new helpful resource guide that will soon be available. I am not only honored to have been asked for Ear Community to be included in this new helpful guide for parents, but I am also proud to know that more parent advocates are helping and giving back to the community through education and support. Advocacy is a wonderful thing. Thank you for including Ear Community.
Audiology Online Embraces the Microtia and Atresia Support Group…
Also on January 16, 2012, I received an e-mail from AudiologyOnline, http://www.audiologyonline.com/, asking to link to our new website when it launches. What an honor to know that a global audiology organization is excited for our new website and appreciates the passion about hearing loss in our support group. Thank you Audiology Online for your support!
The Educational Audiology Association Embraces Our Support Group…
On January 16, 2012 I receive a message from an audiologist letting me know that our support group was “spotlighted” by the Educational Audiology Association, the EAA. This was very exciting news not just for our support group, but we also had over 20 audiologists join our group over the next couple of days. Thank you for your support EAA! http://www.edaud.org/
Dr. Greg O’Toole of the UK Embraces Our Support Group…
On December 21, 2011, I received an e-mail from Dr. Greg O’Toole of the UK (world renown Rib Graft surgeon) sharing some information with me including a video of one of his patients, named Ethan, who was born with Microtia. Thank you Dr. O’Toole for your kind message and for embracing our global support group. Thank you!
The Microtia and Atresia Support Group Turns 1.5 Years Old on November 20th, 2011…
On November 20, 2011, our support group turned 1.5 years old! When founded on May 20, 2010 I was our group’s first member. Since then, we have grown to have over 2,500 global members (including anonymous members) total. According to our support group’s Facebook statistics, we have had nearly 1 million post views in the past 1.5 yar period alone and have members belonging from over 45 countries.
