Cochlear, Oticon Medical, and Sophono Sponsor the First Annual Microtia and Atresia Family Picnic in Yonkers, New York Through Ear Community…

With great pleasure I would like to thank Cochlear Americas, Oticon Medical and Sophono for sponsoring our summer picnic that was just held in Yonkers, New York for Microtia and Atresia families (including Hemifacial Microsomia, Treacher Collins and Goldenhar Syndrome families).  Our event would not have been possible if it were not for our sponsors.  Thanks to you for sponsoring our picnic, our kids had a wonderful time playing with each other, were able to enjoy some fun entertainment and activities and enjoy a delicious catered lunch.  Thank you also for helping educate our families more about hearing loss and the technology available that can help make hearing loss manageable.  I would also like to thank Oticon Medical for making it possible for me to be at the NY picnic so that I could meet so many of the families whom I have been speaking with since founding our support group.  Thank you!  A little over 100 people attended our picnic this Saturday!  We had families travel from Ohio, New Jersey and from all over the state of New York including a family from Columbia.  In addition to our families and individuals who attended our picnic, Dr. Thomas Romo and Dr. Russell Griffiths were also among our families.  Dr. Thomas Romo is one of NYC’s finest plastic surgeons, is the Founder of the Little Baby Face Foundation and the Director of facial and reconstructive plastic surgery at Lenox Hill Hospital and Manhattan Eye, Ear and Throat Hospital.   Dr. Russell Griffiths has his private practice in Boise, Idaho and specializes in a variety of facial plastic surgery including ear reconstruction.  Thank you to Alan Raffauf (VP of Mktg. for Oticon Medical), Kerry Roesch (North American District Sales Manager for Sophono), and Alison Mendez (NY Territory Sales Rep for Cochlear) for being at our picnic.  I would like to thank Daisy Alcivar Garrison for being our NY picnic host and for organizing our event.  Daisy would like to carry on the torch and host a picnic in New York for Microtia families every year.  Thank you to Pee Wee the clown who was our awesome magician, snow cone maker, DJ, face painter/balloon maker and popcorn maker.  Yep, Pee Wee did it all!  The kids had a wonderful time listening to him and dancing and playing games.  Pee Wee gave us an amazing discount on everything he did for us which is very much appreciated. I would also like to say a very special thank you to Marcos of Valentina’s Pizzaria who catered our delicious Italian lunch (rigatoni, chicken parm, garlic balls, salad, french fries, and drinks). Marcos not only catered our event at his cost (helping give Oticon Medical a 50% discount for covering the food), but Marcos snuk in some very delicious cannolis as a special treat for all of the parents to eat and asked a friend to cater some delicious cupcakes for the kids. Marcos applauds what we are doing for the Microtia/Atresia community and he has offered to cater next year’s NY picnic for FREE and he also would like to do this for many years to come to support Ear Community and the Yonkers, NY community. Marcos and PeeWee, thank you for helping make our Microtia/Atresia picnic in New York so special for these families and especially for our kids. Thank you for giving back to the community!  I would also like to thank Build-A-Bear for donating a fully stuffed and dressed bear that one lucky little girl won during our raffle.  I have a feeling this little girl just got a new best friend! I would also like to thank the Ear to Ear Foundation for asking the Oriental Trading Company for some fun goodies for the kids. Thank you to the Oriental Trading Company for those goodies provided and the kids loved them.  Thank you! I will always remember the experiences these picnics provide.  I can’t tell you all how very nice it was to finally meet everyone, watch the kids play together and have fun, see families mingling with medical professionals in a relaxed setting and learning about hearing technology in an unbiased manner. Thank you to everyone involved for helping me find a way to bring Microtia/Atresia families together.

Melissa Tumblin

Founder of Ear Community and the Microtia and Atresia Support Group on Facebook

Happy 2 Year Anniversary to the Microtia and Atresia Support Group (founded on May 20, 2010)…

Hello Everyone,

Today marks the 2 Year Anniversary for our global support group on Facebook, the Microtia and Atresia Support Group.  Our support group has helped thousands of families and individuals around the world learn how to become better advocates and learn about all of their options.  Our support group has become internationally recognized and embraced by medical professionals and organizations around the world.  I look forward to our support group family continuing to grow as we grow.  Thank you to all of the families and individuals who are a part of our support group because without you we would not be where we are today.

Sincerely,
Melissa Tumblin
Founder of Ear Community and the Microtia and Atresia Support Group

OTICON Medical Sponsors Microtia and Atresia Family Summer Picnic in Toronto, Canada!

I would like to thank OTICON MEDICAL for sponsoring our 1st Microtia and Atresia Family Summer Picnic in Toronto through Ear Community and the Microtia and Atresia Support Group.  I am honored and thankful for your support and in helping me bring together families with children and adults who have Microtia/Atresia, Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins.  Thank you for your kindness and compassion in helping bring families together and in helping educate them about hearing loss.

Sincerely,
Melissa Tumblin
Founder of Ear Community and the Microtia and Atresia Support Group

Ear Community From the Heart, an article published in the Broomfield Enterprise today

Hello Everyone,

This morning, Sunday March 18th, 2012, a very nice story went out in the Sunday Morning Broomfield Enterprise news paper for our home community.  Joe Rubino (Broomfield Enterprise Reporter) did a wonderful job relaying my feelings and points regarding helping promote public awareness about Microtia and Atresia and how the Ear Community website can help many families and individuals across the world learn more about Microtia/Atresia and hearing loss.

http://www.broomfieldenterprise.com/ci_20191221/broomfield-moms-ear-community-comes-from-heart?IADID=Search-www.broomfieldenterprise.com-www.broomfieldenterprise.com

Thank you!

Melissa

Microtia and Atresia Global Conference Call on Thursday, March 8th, 2012…call in on 1-866-613-5223 at 4:30pm MST

Hello Everyone!

On Thursday, March 8th at 4:30pm Mountain Standard Time (6:30pm Eastern Standard Time) for American and Canadian time zones, I will be hosting a global conference call to discuss Microtia and Atresia through the AboutFace Organization in Canada.  Anyone around the world is welcome to join in on this call if you can dial into a 1-866 number.  This call is FREE to everyone and is sponsored by the wonderful AboutFace Organization.  We will touch on Microtia and Atresia in general, including discussing dealing with public stares and comments about our children, raising our children with self confidence, etc…  Families who have children with additional syndromes/conditions are of course welcome on the call as we all share in similar experiences, so please join us even if your child does not have Microtia and Atresia.  The call will be approximately 1 hour long.

Directions for joining the conference call are below:

Conference Call Dial In Numbers: 1-866-613-5223 or 1-416-204-9354 (direct in Canada)

 

Conference Access Code: 1263325

How Participants Join the Conference Call:

 

  1. Dial the “conference dial in number”
  2. When prompted, enter the “conference access code”, followed by the “#”

By pressing *6 you will be able to MUTE your line to cut out any extra background noise, by pressing *6 again will allow you to speak and unMUTE your line.

By pressing *0 will put you in touch with the conference call operator for help

I wish to thank the AboutFace Organization for inviting me to host this conference call and for allowing this call to be a global call for everyone.

Thank you and looking forward to speaking with everyone this Thursday!

Melissa Tumblin

Ear Community is Already Helping Families…

The following “thank you” was posted to our support group wall on Friday, February 17, 2012 by one of our support group members:
“My daughter is 3 1/2years old and for the first time today I feel like we have direction and are getting somewhere with her microtia and atresia. This is all thanks to this group and Ear Community. Melissa, thank you for all the long hours and hard work you put into this. Today Sophia was fitted for a soft band Baha which we weren’t informed was an option until I read about it on here. I was also able to get in touch with a lady at Shriners Hospital in Chicago who made us feel very hopeful about having medpor surgery done which again I did not know about medpor until visiting Ear Community. And, to top it all off, we had the pleasure of having met a lilttle girl with artesia through this site. Jennifer Barr and Melanie have been a blessing!!
With a very thankful heart!”
Melissa Parish Shemanski
Thanks for sharing your experience with all of us Melissa.
Sincerely,
Melissa Tumblin

Continued Coverage Following the Launch of EarCommunity.org

Hello Everyone!
On Wednesday, February 1, 2012 the new EarCommunity.org website launched and on Wednesday, February 8, 2012 the press release went out announcing the launch of EarCommunity.org Below are just some of the news wire resources who announced Ear Community:
Yahoo Finance:
Link no longer available, but may be archived.

Market Watch:
http://www.marketwatch.com/story/earcommunitycom-is-first-to-offer-support-and-resources-for-individuals-and-families-living-with-microtia-and-aural-atresia-2012-02-08

Street Insider:
http://www.streetinsider.com/Press+Releases/EarCommunity.org+Is+First+to+Offer+Support+and+Resources+for+Individuals+and+Families+Living+with+Microtia+and+Aural+Atresia/7149394.html

Bradenton Herold:
Link no longer available, but may be archived.

Spin Shell (Japan):
Link no longer available, but may be archived.

Hearing Review:
http://www.hearingreview.com/2012/02/earcommunity-com-launched-to-support-people-with-microtia-and-their-families/

AudiologyOnline:
http://www.audiologyonline.com/news/news_detail.asp?news_id=5047

Advance for Practice Management:
http://audiology.advanceweb.com/News/News-Watch/New-Website-on-Microtia-and-Aural-Atresia.aspx

As of 2/16/2012, EarCommunity.org has had 2,120 visits to our website with 9,281 page views in just the first 15 days. If you look at our “global” map, you will see how many are utilizing EarCommunity.org across the world already.

Thanks so much!
Melissa and Ally (RMA/almost 2.5 years old)
Founders of Ear Community and the Microtia and Atresia Support Group on Facebook

The Small Wonders Foundation Recognizes the Ear Community Website…

Following the announcement of the press release for Ear Community, the Small Wonders Foundation recognizes Ear Community by announcing us on their Facebook page.  The Small Wonders Foundation was founded by a group of parents in hopes of helping other children receive surgery who could not afford it. This group of exceptionally wonderful parents have children or loved ones themselves that needed surgery. When recognizing the talented surgical skills of Dr. John Reinisch, they decided to found the Small Wonders Foundation as a way of giving back to families and helping with surgeries through Dr. Reinisch. This group of parents is amazing and I want everyone to know these parents along with the help of Dr. John Reinisch (a highly recognized and world renown pediatric plastic surgeon and the pioneer of the Medpor surgical technique in ear reconstructive surgery) are the amazing people behind the Small Wonders Foundation.  Thank you for all that you do!

Dr. Thomas Romo, Founder of the Little Baby Face Foundation, Recognizes Ear Community

Following the announcement of the Ear Community press release, Dr. Thomas Romo, Founder of the Little Baby Face Foundation recognizes the Ear Community website by announcing it on support groups and in his own blog on his website.

Press Release for Ear Community

Hello Everyone,
I am very proud to say that the press release went out today (Tuesday, February 8, 2012) at 1PM EST for our new website www.EarCommunity.org in my efforts of helping promote public and educational awareness about Microtia/Atresia.  The press release was picked up by many business searches including Yahoo Finance, Reuters, Street Insider, Ameritrade, Spin Shell.TV (which is a Japanese search), Market Watch, Bradenton Herold, and many more (1110 results to be exact although some are bogus). In addition to the above mentioned searches, the press release also went out to “all” hearing journals.  I am very happy about this and very pleased. Also, since our website launched on Feb. 1st, Google and Yahoo have been indexing our site to make it more available in searches and so far we have had 1,164 visits to the site and 5,488 page views as since the launch of February 1st.  Below are just some of the links where our press release was announced:

Audiology Online:
http://www.audiologyonline.com/releases/earcommunity-com-first-to-offer-1967

Market Watch:
http://www.marketwatch.com/story/earcommunitycom-is-first-to-offer-support-and-resources-for-individuals-and-families-living-with-microtia-and-aural-atresia-2012-02-08

Street Insider:
http://www.streetinsider.com/Press+Releases/EarCommunity.org+Is+First+to+Offer+Support+and+Resources+for+Individuals+and+Families+Living+with+Microtia+and+Aural+Atresia/7149394.html

Bradenton Herold:
http://www.bradenton.com/2012/02/08/3858016/earcommunitycom-is-first-to-offer.html

Spin Shell (Japan):
http://spinshell.tv/news/view/58346/earcommunity_com_is_first_to_offer_support_and_resources

Thanks!
Melissa and Ally (RMA/almost 2.5 years old) 🙂
Founders of Ear Community and the Microtia and Atresia Support Group on Facebook

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