About Melissa Tumblin

MED-EL USA Invites Young Innovators to Shape the Future of Hearing Technology in the 2025 IDEASforEARS Contest

November 14, 2024 – (DURHAM, NC) – MED-EL, a pioneer in hearing implant technology, today launched the 2025 IDEASforEARS competition in celebration of World Inventors Day. This global initiative invites young minds to step into the role of inventor, channeling their creativity to design groundbreaking solutions that could transform the lives of people with hearing loss.

Open to children aged 6 to 12 years, this year’s contest encourages entrants to dream without limits and contribute to a future where hearing challenges are met with innovative solutions. One grand prize winner will be awarded a trip to MED-EL’s international headquarters in Innsbruck, Austria, to meet with MED-EL inventors and other child inventors from around the world.

The IDEASforEARS contest serves as a platform where young inventors can unleash their imaginations. Whether through drawings, models, videos, or other creative mediums, children are encouraged to envision the next big advancement in hearing technology. This is not just about competition – it is about fostering a spirit of innovation and a deep understanding of the challenges faced by those with hearing loss.

“The IDEASforEARS contest is more than just a competition. It is an opportunity for young minds to contribute to a future where hearing loss is met with hope, innovation, and ingenuity. Through IDEASforEARS young inventors can explore their creativity and contribute ideas that could shape the future of hearing technology. At MED-EL, we are committed to fostering the next generation of innovators, and this contest allows us to discover fresh perspectives that could influence our product development and enhance the lives of those with hearing loss,” said Jennifer Robinson, Corporate Director of Product Management Hearing Solutions at MED-EL.

Since the first contest in 2017, IDEASforEARS has captivated more than 1,200 young people from more than 40 countries, proving that the desire to create and help others knows no borders. The contest not only celebrates the inventive spirit of children but also raises awareness about hearing loss, a condition that affects millions globally. By participating, children gain insight into the importance of hearing health and the potential for technology to change lives.

MED-EL invites parents, guardians, and teachers to encourage children to participate in this life-changing contest. More information and submission details can be found at IDEASforEARS.medel.com. Submissions close on January 17, 2025, at midnight (CET).

About MED-EL

MED-EL Medical Electronics, a leader in implantable hearing solutions, is driven by a mission to overcome hearing loss as a barrier to communication and quality of life. The Austrian-based, privately owned business was co-founded by industry pioneers Ingeborg and Erwin Hochmair, whose ground-breaking research led to the development of the world’s first micro-electronic multi-channel cochlear implant (CI), which was successfully implanted in 1977 and was the basis for what is known as the modern CI today. This laid the foundation for the successful growth of the company in 1990, when they hired their first employees. To date, MED-EL has more than 2,800 employees from around 80 nations and 30 locations worldwide.

The company offers the widest range of implantable and non-implantable solutions to treat all types of hearing loss, enabling people in 137 countries enjoy the gift of hearing with the help of a MED-EL device. MED-EL’s hearing solutions include cochlear and middle ear implant systems, a combined electric acoustic stimulation hearing implant system, as well as surgical and non-surgical bone conduction devices. www.medel.com

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MEDIA CONTACT:
Rebecca Novak Tibbitt
media.us@medel.com

Microtia and Atresia Awareness Day 2024

The microtia and atresia blue awareness day ribbon.

The microtia and atresia blue awareness day ribbon.

On November 9th, 2024, our Ear Community Organization’s 9th dedicated International Microtia and Atresia Awareness Day took place for our beautiful community! We had families, medical professionals, schools, hearing device companies and other organizations embrace our special day around the globe! The microtia and aural atresia community was embraced by many community’s all over the world including the United States, Canada, Taiwan, the UK, Denmark, China, Argentina, Ecuador, Columbia, Mexico, Mongolia, Germany, France, Italy, Hungary and more!

Each year, we come together to celebrate our beautiful children and promote awareness and education about microtia and atresia. It is important to shine a light on this rare cause as only 800,000 children and adults have microtia and atresia in the world. In the United States, there approximately 58,000 individuals living with microtia and atresia with an estimated 660 babies being born each year in the US (1 out of 6,000 chances at birth).

4 grades of microtia and aural atresia

4 grades of microtia and aural atresia

November 9th is dedicated to spreading hope and knowledge of a rare congenital birth anomaly known as microtia and aural atresia. Microtia (missing or underdeveloped ears) and Atresia (missing or underdeveloped ear canal, resulting in hearing loss) when the ear(s) occurs during the 1st trimester of pregnancy when the ears do not fully develop. Often affecting one ear or both ears, Microtia and Atresia come as a surprise when diagnosed at birth. Facial challenges, hearing loss and the longing for social acceptance are some of the daily concerns for those who are born with Microtia and Atresia.

It is the intention of Microtia & Atresia Awareness Day to help promote public awareness and the hope that future generations of families will leave the hospital armed with more answers than questions and their dreams for their child intact. It is also the hope that if more people learn about microtia and atresia, that they will be kinder and more accepting. Through this national day, individuals with Microtia and Atresia and their families can find out about organizations and resources for information and support.

Zoey receives the gift of hearing for National Microtia and Atresia Awareness Day. San Antonio, TX, November 5th, 2024. Ponto 5 Mini thanks to Oticon Medical and Ear Community. (right ear microtia and atresia)

Zoey receives the gift of hearing for National Microtia and Atresia Awareness Day. San Antonio, TX, November 5th, 2024. Ponto 5 Mini thanks to Oticon Medical and Ear Community. (right ear microtia and atresia)

One of our many highlights this November 9th was our Ear Community Organization being able to help give the gift of hearing to Zoey, a young girl in Texas who had been denied a bone conduction hearing device multiple times by different health insurance plans. No one should ever have to fight to hear! Hearing devices give people their lives back and also allow for a better quality of life. Zoey’s story shares how her hearing loss changed over time and how it began to affect her in school. Thankfully, Zoey’s

Melissa and Swati, "Let's Normalize the Differences - Microtia". Renaissance with Swati on Youtube.

Melissa and Swati, “Let’s Normalize the Differences – Microtia”. Renaissance with Swati on Youtube.

family found Ear Community! There were many other highlights this November 9th! Ear Community’s Founder, Melissa Tumblin, was invited on a beautiful podcast called Renaissance with Swati to talk about differences and acceptance of our children. Thank you to Swati Jain for doing this beautiful podcast with me for Microtia Awareness Day! Also, the International Center for Ear Reconstruction in China hosting an amazing event for 35

The International Center for Ear Reconstruction in China microtia awareness day event, 2024.

The International Center for Ear Reconstruction in China microtia awareness day event, 2024.

microtia and atresia families this year! The event was able to educate microtia families on their options and also about helpful resources like the Ear Community Organization! The Mongolian Microtia community brought 47 children together this year making it a special day for everyone who attended!

It’s always a joy to watch our children advocate for themselves. It’s even more of a joy to see the pride in them as they educate others about their rare cause. We had many children educate in their school classrooms this year, presenting about microtia, hearing loss and hearing devices. Many schoolroom teachers and Teachers of the Deaf embraced their students who have microtia and atresia in the classroom, sharing

California

about options and also enjoying cookies and cupcakes making it a special day to learn something about other’s differences! From school parking lot signs posting about our awareness day to schools including our special community day on their monthly calendars – it was a wonderful time to educate and include so many! Most importantly, there was a lot of talk about kindness and acceptance and that it is okay to be curious, but be curious in a understanding way. It is important to remember that children and adults with microtia and atresia are not different from anyone else. Individuals with microtia and atresia can do everything anyone else can do. Especially when given the chance to. In the UK, The Enniskillen Castle & Strule Artts Centre in Omagh where lit up on November 9th for our cause just like last year in Canada where the CN Tower was lit up in our blue awareness day color. Amazing!

The Furze Family promoting microtia awareness in the school classroom!

The Furze Family promoting microtia awareness in the school classroom!

As parents, we are willing to move mountains for our children in order to give them what they need. It also takes a village to make this happen! Ear Community’s mission has always been filled with the hope to find the answers we are looking for and for every child and adult born with microtia and atresia to know they are never alone, because they have all of us in our community! Our organization brings our families together, we educate on the options that can make our loved ones live the happiest lives, we do research to make our communities better, we advocate for what is needed and we provide information that will help the next

Kayla sharing about microtia and hearing loss in her school classroom.

Kayla sharing about microtia and hearing loss in her school classroom.

family’s journey easier when they have a child born with microtia and atresia. However, we cannot do this alone. Helen Keller once said “Alone we can do so little; together we can do so much!” We are grateful for the community we now have! We are grateful to everyone who embraces our rare cause and helps give back to our community. Thank you to all who love our children and adults with microtia and atresia! Thank you for taking a moment to learn about something new like microtia and aural atresia!

A HUGE thank you to Ear Community’s Sponsors who help give back to our community, including all of our donors who support the good we do and allow our organization to keep on keepin on! Without you, our community would not be here to offer so much in the way of our events, donating hearing devices to those in need, awarding college scholarships, advocating for legislation that is needed and championing genetics and general research that is needed for our community. Especially, shining a light on our cause during Microtia and Atresia Awareness Day! Thank you to everyone’s continued support to our organization and community! It is appreciated more than you know and means the world to the community we serve!

Melissa Tumblin
Founder, Executive Director
Ear Community

Helping Zoey Hear on National Microtia and Atresia Awareness Day

Zoey receives the gift of hearing for National Microtia and Atresia Awareness Day. San Antonio, TX, November 5th, 2024. Ponto 5 Mini thanks to Oticon Medical and Ear Community. (right ear microtia and atresia)

Zoey receives the gift of hearing for National Microtia and Atresia Awareness Day. San Antonio, TX, November 5th, 2024. Ponto 5 Mini thanks to Oticon Medical and Ear Community. (right ear microtia and atresia)

Meet Zoey, a sweet 14 year old girl from San Antonio, Texas! Zoey was born with a congenital anomaly affecting her right ear, known as microtia and aural atreisa – where her outer ear and ear canal did not fully develop, causing hearing loss. Even though Zoey has always been interested in school and is social, she has struggled off and on with her hearing over the years. When Zoey was in elementary school, her mom, Anna, took her to the audiologist for a routine hearing test. At the time, Zoey had healthcare coverage through the Texas CHIP program. After learning more about Zoey’s hearing loss and receiving a recommendation from their audiologist for a bone conduction hearing device, Anna was excited to help Zoey hear better. However, the CHIP program denied coverage for a hearing device when Zoey’s family applied.

Fast forward a few years later where Zoey is now in 8th grade. Her hearing loss is becoming more of a struggle for her in the school classroom because of background noises and loud sounds. Anna didn’t realize how much Zoey was struggling to hear each day until Zoey finally mentioned it and they had a conversation about her hearing. This time, Anna applied to Medicaid for a bone conduction hearing device. Anna had been waiting to hear back from Medicaid since 2023 – only to be denied! Meanwhile, Zoey began struggling in school. Anna shared that Zoey had become fearful of asking her teachers to clarify or repeat themselves because she thinks they will think she is not listening. Zoey had also begun guessing about what was being said while trying to read lips. Zoey had also recently began struggling with hearing how loud or soft her voice was when speaking. Frustrated, Anna began reaching out to a few hearing loss organizations that she was informed of in hopes of finding a hearing device for Zoey. Sadly, Anna didn’t receive any responses back from the applications they filled out! Anna says Zoey had cried many times, worrying about her hearing and sadly wondering why they couldn’t find the help she needed!

Anna, Kate, Zoey, Steven and Eloise Quesada, November 2024.

For years, Anna had belonged to an online community for families with children who have microtia and atresia. Once Anna realized the support group was part of a nonprofit organization called Ear Community, she applied for a hearing device for Zoey. After Ear Community’s Board of Directors learned how this family has been continually denied access to hearing for their daughter, the Board voted to help Zoey obtain a bone conduction hearing device! On November 5th, 2024, Zoey received the gift of hearing with a Newly donated Ponto 5 Mini bone conduction hearing device from Oticon Medical! Zoey was fitted with her Ponto 5 Mini by Dr. Phallon Doss, owner of the Doss Audiology & Hearing Center. Anna said, “Zoey started crying when she heard through hearing device for the first time. She went outside of the audiology office and said Wow! I didn’t know birds chirped like that! The best part, Anna said, is when Zoey got home and practiced the trumpet she’s been playing for the last years, she said I never knew trumpets really sounded like that!”

Anna is grateful to the Ear Community Organization for helping her daughter hear. – “Thank you for fighting for Zoey in this journey when it felt like I had exhausted every possible option, knocked on every door and felt like I had nowhere else to turn! You have been God’s response to a 14 year old girl’s desperate (and silent) cries for help! Thank you Ear Community!”  Melissa Tumblin, Executive Director of Ear Community says, “It takes a village. Our organization has been helping children and adults in need obtain bone conduction hearing devices since 2012. No one should ever have to fight this hard to hear! And yet insurance providers continue to deny these medically necessary hearing devices! For this very reason, our organization has a Federal piece of legislation in place that would help make coverage consistent, known as Ally’s Act, H.R. 2439/S. 1135. Our community needs this bill to pass!”

Zoey and Dr. Phallon Doss

When a hearing device is donated by the Ear Community Organization, more than just the Ear Community Organization is involved. A special thank you to Anna and Zoey for advocating for better hearing and for never giving up! A special thank you to Oticon Medical for giving back to the community through nonprofits like Ear Community, so that together we can help improve people’s quality of life! Thank you to Brendalys Trinidad, Consumer Marketing and Events Manager of Oticon Medical US, for making sure Zoey’s Ponto made it in time for her special hearing day! Brendalys has been behind many gifts of hearing with Ear Community and we are grateful for you! A special thank you to Dr. Phallon Doss for not only fitting and programming Zoey’s Ponto, but for helping this family receive the gift of hearing that will help Zoey thrive! Also a special thank you to Tony Puricelli, Territory Manager for Oticon Medical, for making sure Zoey and Dr. Doss had everything needed for Zoey’s special hearing day! It’s quite possible that Zoey’s fitting wouldn’t have worked out the way it did if it were not for everyone involved pressing on and advocating when needed! Most of all, Zoey received the gift of hearing during National Microtia and Atresia Awareness Day, which is something quite meaningful all on its own.

Thank you to Ear Community’s Board of Directors for helping change a child’s life! We are so happy you found us, Anna and Zoey! We are even happier Zoey can hear the birds, her trumpet and not have to worry about missing a beat in the classroom when her teachers are teaching. We know Zoey will go on to do amazing things!
Melissa Tumblin
Executive Director
Ear Community

How the Lang Family is helping give back in Minnesota

Alex and Maggie Lang hosting a fundraiser for Ear Community

Alex and Maggie Lang hosting a fundraiser for Ear Community

Alexander and Maggie Lang wanted to help give back to the community by supporting a nonprofit that not only was near and dear to their hearts, but one that would help children and adults in need.

Alex was born without his right ear (microtia) and has hearing loss due to an underdeveloped ear canal (aural atresia). He often wondered if there was an organization or a resource available that helped individuals just like him or a place to connect with others in the same situation. To Alex’s surprise, he recently discovered the Ear Community Organization! During the summer, Alex and Maggie attended an event that was hosted by the Ear Community Organization in Edina, in collaboration with Minnesota Children’s Hospital, and had a wonderful time! As Alex watched younger kids with microtia and atresia playing together at the event, he thought how wonderful this would have been to have when he was a kid! Alex wanted to become more involved with Ear Community as soon as he could and recently became a Board Member for the organization.

Alex Lang, hosting a fundraiser for Ear Community

Alex Lang, hosting a fundraiser for Ear Community

On November 1st, 2024, Alexander and Maggie Lang hosted a fundraiser in Minnetonka for the Ear Community Organization to help give back and help support children and adults who are missing one or both ears with hearing loss. Family, friends and members of the community attended the organized event. To their surprise, the fundraiser raised over $5,000 for the microtia and aural atresia community! This fundraiser was extra special for Alex because it allowed him to embrace a community that is close to him and be an inspiration to others in the same situation! Alex also said this event was very special to him as it reminded him of a special day like his wedding day – being around so many friends and family, talking and sharing happiness with everyone! Most importantly, with feelings of love and acceptance by so many, the day really made him smile. Alex enjoyed the opportunity to promote awareness and educate about something that means so much to him. Since finding Ear Community, Alex has been able to connect with the local children’s hospital and doctors through the microtia and atresia clinic where he can help reach out to other families in the same situation. He is looking forward to meeting new microtia families and sharing his experience along with helping them know they are never alone.  Alex also looks forward to teaching the kids all of the ear related humor he knows too! Melissa Tumblin, Ear Community’s Executive Director said “Alex is a incredible role model for these families and such a wonderful inspiration to so many! We are lucky to have him as a member of our board and a part of our organization!”

A special thank you to Maggie Lang for being by Alex’s side and supporting him in so many ways. A special thank you to Alex’s family and friends for helping him be the incredible person he is today- the fun personality and genuine person he is. Thank you so much to the Lang Family for making this fundraiser possible and the work that was put into making everything a success! Thank you to everyone who helped give back by making a contribution to the Ear Community Organization! Thank you to Jade Park at Unmapped Brewery for donating the space for this special event! Thank you to Rob for donating the whiskey give-a-way! And thank you to Jared Jenkins of the Minnesota Wild for donating the signed hockey stick! – Together each one of you helped make this special day extra special! Especially for Alex and his family!

Funds raised will go toward Ear Community’s events, college scholarships, hearing device donations, promoting awareness and education about microtia and atresia, genetics research and community research as well as legislation known as Ally’s Act that will help the members of this community thrive when it comes to hearing device coverage.
Thank you for this incredible support!

Here are some fun memories from this fundraiser:

Thank you,
Melissa Tumblin
Ear Community

 

Ear Community presents at the 8th International Congress on Bone Conduction Hearing and Related Technologies in Denver, Colorado

Alyssa Tumblin of the Ear Community Organization, recipient of the 2023 Osseo Super HearO Award in Denver, CO (September 6-9).

Alyssa Tumblin of the Ear Community Organization, recipient of the 2023 Osseo Super HearO Award in Denver, CO (September 6-9).

September 6th-9th, 2023

What an exciting week being part of the 8th International Congress on Bone Conduction Hearing and Related Technologies that was hosted here in Denver, Colorado! Melissa Tumblin, the Founder of The Ear Community Organization, was one of the many educational presenters during the Congress on bone conduction hearing device technology. From ENTs and audiologists presenting on the latest research for managing hearing loss and hearing restoration to the leading hearing device technology companies representing the latest bone conduction hearing devices on the market (Bone Conduction Hearing, Cochlear, MED-EL and Oticon Medical), attendees traveled from all parts of the globe to be at this year’s international congress! As a guest speaker, Melissa shared about the tireless work the Ear Community Organization does for the microtia and aural atresia community, including genetic research, advocacy efforts, federal legislation the organization has in place known as Ally’s Act, H.R. 2439/S. 1135 and the need for bone conduction hearing devices and how grateful our community is for this technology that helps give our community members their lives back!

Alyssa Tumblin of Ear Community receiving the Super HEARo Award from Dr. Stephen Cass at the 2023 International Osseo Meeting in Denver, CO.

Alyssa Tumblin of Ear Community receiving the Super HEARo Award from Dr. Stephen Cass at the 2023 International Osseo Meeting in Denver, CO.

Melissa’s daughter, Alyssa “Ally”, who is the inspiration behind the organization, was presented with the Osseo Super HEARo Award by her ENT, Dr. Stephen Cass of the University of Colorado Health School of Medicine. Dr. Stephen Cass is a renowned Otolaryngologist/Neurotologist in the industry and had the honor of hosting the 8th International Osseo Congress in Denver. Dr. Cass did an amazing job organizing this international event! Congress events like Osseo not only give the global industry the opportunity to share about the latest in technology, but is a great reminder of why bone conduction technology is needed and the difference these hearing devices make for everyone! For many, bone conduction hearing devices are the only type of hearing devices children and adults can benefit from due to the specific hearing loss they may have. In Ally’s case and the reason why Congressman Joe Neguse introduced a Federal piece of legislation named after Ally, is that for many private insurers often deny coverage for these hearing devices when they are medically necessary, absolutely needed and recommended by audiologists and ENTs.

Dr. Stephen Cass awarding Alyssa Tumblin the Super HEARo Award at the International Osseo Meeting in Denver, CO.

Dr. Stephen Cass awarding Alyssa Tumblin the Super HEARo Award at the International Osseo Meeting in Denver, CO.

Bone conduction hearing devices give individuals the opportunity to continue living their lives in a vocal world by allowing them to thrive in their communities, go to school, have jobs and live the lives they dream. Without specific hearing technology like bone conduction, the children and adults in need of hearing cannot benefit from traditional hearing aids. A special thank you to Dr. Cass for recognizing Ally for all of her advocacy and work in the community when it comes to microtia and aural atresia! Thank you to Oticon Medical for also publishing a full sized add on Ally’s Act, H.R. 2439/S. 1135 in the Osseo directory and about the Oticon Medical Ponto bone conduction hearing device!

While at Osseo, we got to see a lot of industry friends and some amazing legends behind bone conduction technology in the hearing device field too! What an incredible honor it was to meet Professor Bo Håkansson – The Father of Bone Conduction and Professor Anders Tjellström who was The Ear-Nose-Throat surgeon who developed the surgical technique for bone conduction! We caught up with Geoff Ball from MED-EL again who is the inventor of the VIBRANT SOUNDBRIDGE. Geoff has attended some of our Ear Community picnics here in the past and it is always great to see him! Also pictured is Ally’s amazing ENT, Dr. Stephen Cass! Thank you for honoring Ally with this Congress’ patient award at home here in Colorado! ❤ I must say that I like to include Ally along with all of the above list of legends as she is a little legend herself in the microtia and atresia community and also for the bone anchored hearing device industry! Thank you again to Dr. Cass for presenting Ally with the Super HEARo award during this International scientific meeting and for giving Ear Community the opportunity to be spotlighted for the work our organization does and the Advocacy efforts we work on alongside congress.

The Oticon Medical Global Team at the 2023 International Osseo Meeting in Denver, CO.

Melissa Tumblin and Dr. Carol Liu at the 2023 International Osseo Meeting in Denver, CO.

It was great seeing many of our industry partners and friends while at Osseo! We visited with Cochlear Americas at their booth learning more about Baha 6 and the Osia System! It was great catching up with Dig Howitt (President Australia HQ), Patti Trautwein (US Vice President), Ryan Lopez and Melissa Thompson (Product Managers), Melanie Chang (Marketing Manager) and Jim Byrd (Director of Reimbursement)! We caught up with the Oticon Medical team in their booth too sharing about the Ponto System and the excitement about the anticipated Sentio System at the time (now launched 2024). A special thank you to Justin Pfeiffer (Director of US Sales) for always wearing our cause’s blue microtia and atresia awareness wristband! Justin has worn our wristband for years, supporting our community and cause for microtia and atresia! ❤️ We caught up with many on the US, Danish, French and Swedish Teams including Krista Bramlet, GM of Oticon Medical US (at the time in 2023), along with Rene Govaerts – GM of Oticon Medical Europe, Sege Kriek – Product Specialist and Clinical Researcher with Oticon Medical, Steffen Vater – Director of Sales for Oticon Medical Europe and Brendalys Trinidad – Marketing at Oticon Medical US! It was great to see advocate, Angela Sabal, again too, whom I have known for the past 12 years! We spent some time in the MED-EL booth learning more about the BONEBRIDGE, SOUNDBRIDGE and ADHEAR bone conduction Systems! It was wonderful seeing John Sparacio again – President of MED-EL US and Geoff Ball – Inventor of the Vibrant SOUNDBRIDGE hearing device. Geoff is also a recipient of the SOUNDBRIDGE himself!  It was wonderful visiting with Corey Brackmann – Audiology Sales Representative,

Alyssa Tumblin with Dr. Luis Serrano at the 2023 International Osseo Meeting in Denver, CO.

Kevin Vukovich –  US Regional Director and Jake, one of MED-EL’s biomechanical engineers.I also learned about some new technology including finally getting the chance to meet some local and international friends in person in the medical field including Dr. Luis Serrano from Ecuador and Dr. Carol Liu from Texas Children’s Hospital, the audiology research team at the University of Miami and more! Dr. Serrano is a friend of mine who has embraced the research for microtia and atresia in Ecuador through is practice, AudioCentro, in Ecuador. Dr. Serrano and I have also worked on genetics research together for microtia. It was so wonderful to see Dr. Liu again from Texas! She has advocated for Ally’s Act, embraced National Microtia and Atresia Awareness Day and runs an incredible microtia and atresia clinic at Texas Children’s Hospital in Houston! I was also able to finally meet some of the audiology research team from the University of Miami including Chief of Audiology – Dr. Hillary Snapp along with audiology professors Dr. Samantha Espinal and Dr. Chrisanda Sanchez, who cheered from the ballroom during Ear Community’s presentation when our support group (the Microtia and Atresia Support Group on FB) was mentioned!

It was a wonderful International Congress for everyone who attended!
Here are some great memories from the 8th International Congress on Bone Conduction Hearing and Related Technologies that was hosted here in Denver, Colorado.

Melissa Tumblin
Ear Community

 

 

Spreading Microtia awareness in Georgia through the children’s play, “Finding Nemo Jr.”!

How one family is giving back to the microtia and atresia community through Ear Community and the arts!

Finding Nemo Jr. children's play in Georgia (Thomaston Upson Art Council) 8/2024

Finding Nemo Jr. children’s play in Georgia during August 9th, 10th and 11th, 2024 with the Thomaston Upson Arts Council

 

 

 

 

 

Lauren and Paxton Hoyal during the Finding Nemo Jr. children's play at the Thomaston Upson Art Council in August, 2024.

Lauren and Paxton Hoyal during the Finding Nemo Jr. children’s play at the Thomaston Upson Art Council in Thomaston, Georgia, August, 2024.

 

 

Meet Lauren Hoyal! Lauren is the Children’s Art Director with the Thomaston Upson Arts Council (TUAC) in Georgia. Lauren had a vision of educating the community about a rare condition her son, Paxton, was born with. Paxton was born without one ear (microtia) and has hearing loss due to a missing ear canal (aural atresia). Lauren and her family immediately thought of “Finding Nemo” as something everyone could embrace and have a connection with if they are missing an ear – like Nemo’s fin. Filled with excitement, Lauren began planning for a children’s play called “Finding Nemo Jr.!”

As a member of the Board, Lauren shared in a community press release that “TUAC started something new this year called “Shows with a Purpose”. She explained that “We wanted to not only teach our summer campers about the show but also teach them life skills such as compassion and giving back. Although we are small, we can still make a difference! This year we are thrilled to support The Ear Community which is near and dear to my heart! As a community we raised $1000! That brings me to tears! Thank you so much for supporting Microtia and Atresia and bringing awareness! It is so important to teach our children that people who are unique and different deserve love!”

Finding Nemo Jr. showed over three nights on August 9th, 10th and 11th, bringing together over 500 community members with a cast of over 85 children! Lauren wanted to make sure anyone attending with microtia and atresia would have free entry and be given the chance to share their journey living with microtia and atresia at the beginning of the play. She even made sure everyone wore blue awareness wristbands to support our cause! Lauren, her husband Perry, daughter Vada and Paxton, shared at the beginning of the play why it’s important to them to spread awareness and talk about differences, acceptance and kindness. They also shared why they support the Ear Community Organization and it’s mission after struggling to find the answers they were looking for from their doctors while searching for others in the same situation so they don’t feel so alone.

Finding Nemo, Jr. was a huge success in Thomaston, Georgia during the three days of this play’s performance! So many children and adults were involved in making each performance go off without a hitch and pouring their passion and joy into these nights of education and awareness! A close friend of Lauren’s stated that “Lauren Hoyal, our fearless Director had a vision and put it on stage! But what you don’t see is her backstage going to each student telling them that they are special and loved while putting jewels on the little girls’ faces and hugging every one of them! She is creating a culture of love first and the show second!” As they say – it takes a village! Thank you to choreographer, Rachel Jordan, started as a four year old in this program and just wanted to give back! Campbell DeVore and Taylor Walker also came back as camp staff! Our Tech Camp director Leigh DeVore who every day showed up even when it was a hard summer and loved our tech students! Hats off to her assistant Abby Kinard! Thank you to the show’s producer, Amanda Holt, and of course to Lauren – who brought some epic costumes to life during Finding Nemo Jr. and kudos to Cindy Thompson for all photo credits! Thank you to some of the children in the cast who also hosted a lemonade stand to help raise funds for TUAC! A very special thank you to Carmen Ellerbee, TUAC’s Executive Director, for helping work with Lauren and the community to make this play possible through the Arts Council and for wanting to help give back to another nonprofit, helping make a difference together! Carmen believes in the Thomaston community and the families that make up this beautiful community, like the Hoyal Family! It was a beautiful night of education, awareness and giving back on everyone’s part! To learn more about The Thomaston Upson Arts Council, please visit https://www.tuacga.com/

Here is a wonderful video from the Hoyal Family sharing more about microtia and atresia and the Ear Community Organization!
https://fb.watch/ufigZSff_d/

The Ear Community Organization plans to share the play on National Microtia and Atresia Awareness Day on November 9th with the microtia and atresia community since so many community members asked about this play even though they do not live in the state of Georgia! Thank you so very much to Lauren, Perry, Vada and Paxton Hoyal for wanting to spread awareness and promote education about microtia and aural atresia in their community in Georgia! Thank you for thinking of our community & for wanting to give back to our Organization so we can continue doing more good work! A very special thank you to the Thomaston Upson Art Council too for all the good they do in the Thomaston community and to Tidal Wave Auto Spa who was this year’s corporate sponsor for this play and to the arts council! We think it is wonderful that “Shows with a Purpose” will go on to educate many more about rare causes and conditions within the community! Thank you for shining a light on microtia and atresia as the first of many “Shows with a Purpose”!
Melissa Tumblin
Executive Director
EarCommunity.org

Here are some fun memories from Finding Nemo Jr!

 

September is Craniofacial Acceptance Month with the Ear Community Organization!

September is Craniofacial Acceptance Month. The Ear Community Organization proudly works on craniofacial research for our microtia and aural atresia community!

September is Craniofacial Acceptance Month. The Ear Community Organization proudly works on craniofacial research for our microtia and aural atresia community!

September is Craniofacial Acceptance Month!

This month, take the opportunity to spread awareness for those with cleft and craniofacial differences. In addition to spreading awareness, celebrate the researchers and doctors who are dedicated to craniofacial research, helping make the journey easier for all of us!

Did you know Ear Community works on craniofacial microsomia research for our community? Yep, we do! Here are some pictures of our research team – the CARE Study Team. Learn more about what our research team is doing to help improve upon the caregiver experience and journey for the families who have beautiful children and adults who have craniofacial microsomia!❤️

Link to CARE Study website: https://www.thecarestudy.org/

During this year’s ACPA Conference in Denver, CO, the Federal Legislation known as Ally’s Act, H.R. 2439/S. 1135, was championed by the ACPA Advocacy committee. Ear Community’s Founder, Melissa Tumblin, was able to catch up with lots of friends in the industry including Dr. Siva Chinnadurai of Minnesota Children’s Hospital and Dr. Steven Goudy of Children’s Healthcare of Atlanta. Melissa’s daughter, Hailey, also had the opportunity to see Gaten Matarazzo again at the conference! The two last caught up while advocating for legislation that is needed for the community in 2019 with the NIDCR on Capitol Hill (Gaten is the co-Founder of CCD Smiles). It’s always great to see our friends with the CCA and MyFace too – together, our organization’s make an incredible impact for families in the craniofacial community!

Thank you to all of the families in our community who also help out with the surveys we post about! You are all helping give back to our community making it easier for the next family who has a child born with microtia and atresia and craniofacial microsomia (hemifacial microsomia)!
Melissa Tumblin
Founder – Executive Director
EarCommunity.org

Collin Elmore Receives Ear Community College Scholarship

Collin Elmore, Ear Community college scholarship recipient, 9/2024, Winona State University.

Collin Elmore, Ear Community college scholarship recipient, 9/2024, Winona State University.

September 2024
Congratulations to Collin Elmore for being one of our Ear Community college scholarship recipients this year!

Collin was born with microtia and atresia of his right ear and grew up in Folsom, California. Collin’s family has always encouraged him to be a part of community, whether through hobbies or participating in school sports. Having a close family and being involved with the community has helped Collin embrace his microtia and atresia!

Collin doesn’t let his microtia or hearing loss define him. When he realized he needed to hear better, he benefited from a bone conduction hearing device system in the school classroom. He learned ASL as his second language, which he believes has helped him become a better communicator and allows him to stay connected to the Deaf and Hard of Hearing Community. Collin believes in hearing his best and he supports others who would also like to hear their best. In fact, he and his family have advocated for hearing device legislation known as Ally’s Act, H.R. 2439/S. 1135, which would ensure that others have access to implantable hearing devices through their private insurance providers.

In addition to excelling in academics, Collin excelled in athletics too, becoming one of his school’s top athletes in baseball! Collin says, “my hearing impairment, rather than being a hindrance, has taught me to be more attuned to the nuances of the game, sharpening my instincts and enhancing my performance on the field. This dedication has not only contributed to my personal growth, but has also paved the way for the opportunity to play college baseball”.

Collin says that “commitment to overcoming barriers extends beyond personal accomplishments. He enjoys learning from and inspiring others facing similar challenges.” Two years ago, Collin and his family had the opportunity to host an Ear Community picnic, allowing them to give back to the microtia and atresia community and to children and adults in Collin’s same situation. Collin continues to help give back to the community today by playing baseball for Winona State University in Minnesota as a Deaf and Hard of Hearing athlete. As a  Geoscience major with a focus on hydrology, he plans to contribute to the protection of vital resources like Lake Tahoe and the Mississippi River.

Congratulations, Collin! We are SO PROUD of YOU! You ROCK! Have fun playing ball and go on to do great things with water conservation and management!
Thank you!
Melissa Tumblin
Founder – Executive Director
Ear Community

Lucas Anmolsingh receives Ear Community college scholarship

Lucas Anmolsingh, Ear Community college scholarship recipient, September 2024. Yale University.

Lucas Anmolsingh, Ear Community college scholarship recipient, September 2024. Yale University.

September 2024
Congratulations to Lucas Anmolsingh for being one of our Ear Community college scholarship recipients this year!

Lucas was born with microtia and atresia of his right ear and is from Stewartsville, New Jersey. Growing up in a rural town, Lucas explains that the terms microtia and aural atresia were unknown to most. Lucas was a shy kid and often tried to hide his condition, rarely speaking about it. He felt his microtia and atresia was something to be embarrassed of and something that made him feel inferior to others, in addition to feeling alone. His parents were also never informed of any hearing loss communities or helpful resources in their small hometown. However, when he was entering high school, Lucas discovered Ear Community’s website! Lucas explained in his scholarship application, “Not meaning to be dramatic, but the Ear Community website changed my life! I was not aware of the resources, information and community of shared stories that I was missing out on!” As a result, Lucas wanted to help give back and created the website, www.supportforauralatresia.com, when he was in high school sharing his perspective on living with aural atresia. Since then, Lucas has learned to embrace his microtia and atresia, even going on to share his story during a senior class retreat!

Lucas currently attends Yale University where he is pursuing a B.S. degree in Molecular, Cellular and Developmental Biology, with a concentration in Biotechnology. He plans to attend medical school eventually becoming an otolaryngologist, which he believes will allow him to make a lasting impact on others in a way that he can personally relate to his patients while fulfilling his interest in surgery. Lucas is a volunteer at the Yale New Haven Hospital’s infections disease ward as an aid and has volunteered to help other students on campus as a medical debt and insurance counselor for low-income CT residents.

Lucas knows that hearing loss can be scary! In addition to his aural atresia, Lucas struggles with hearing loss in his non-microtic/atretic ear due to a perforated ear drum that is now causing gradual hearing loss. However, he knows that he is not alone and this gives him the confidence to endure any future roadblocks. Even at Yale, Lucas quickly realized that scholarships for hearing loss are hard to come by. Lucas wanted Ear Community to know how thankful he is to our organization by saying “thank you for all of your organization’s work, and I would like to reiterate that what you do makes a real difference! Whether it’s the technical resources, informative contacts/videos or support advice (which my parents and I have all personally used), your resources are vital to the hearing loss community!” Someday, I hope to help those who are just like me and I wish to use your platform to be an advocate for aural atresia, to spread awareness and build confidence in kids with microtia and atresia.”

Congratulations, Lucas! We are SO PROUD of YOU!!! Enjoy learning everything that is needed at Yale and go on to do great things, Lucas!

Thank you!
Melissa Tumblin
Founder – Executive Director
Ear Community

Isabella Cuadras receives Ear Community college scholarship

Isabella Cuadres, Ear Community college scholarship recipient, 8/2024, Florida Gateway College

Isabella Cuadres, Ear Community college scholarship recipient, 8/2024, Florida Gateway College

August 2024
Congratulations to Isabella Cuadras for being one of our Ear Community college scholarship recipients this year!

Isabella was born with microtia and atresia of her left ear and grew up in the Lake City, Florida area. Isabella says while while she was not confident with her little ear growing up, she has managed to become more confident over the years – mainly because her dad also has microtia and she looks up to him, knowing that she is not alone. Isabella says that her dad shows her that their little ears can’t make them less of a person, but just more unique! As a young adult today, she realizes her little ear makes her different in the best way and she wouldn’t have it any other way! Isabella is proud of the confident person she has become!

Excited to begin the next chapter in life, Isabella graduated a year early from high school and is looking forward to attending Florida Gateway College where she plans to earn her AA degree in business for travel. Already realizing how much Isabella enjoys traveling and wondering what places she could explore and how many cultures she could learn about, she would like to become a travel agent! Even though graduating early was scary for her, she believes it was the right choice for her, allowing her to start her college education early. This decision also helped Isabella prove to herself that she can do whatever she puts her mind to!

When Isabella was younger, she was scared to think she would be stuck in a job she didn’t love. Going to Florida Gateway College and earning her AA will give her an opportunity to chase her dreams with travel! Isabella is excited to earn her AA and get out into the real world as a travel agent!

Congratulations, Isabella! We are SO PROUD of YOU!!! Have a wonderful time traveling the world and also making a difference for others as you help them with their plans to travel the world too as a future travel agent!  Learn lots and do great things, Isabella!

Thank you!
Melissa Tumblin
Founder – Executive Director
Ear Community

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