
Advocates Melissa Tumblin, Amy Schefer, Dina Zuckerberg, Marly Eugenio and Melissa McGowan present at the Annual ACPA Meeting in Boston during March 2026.
I am grateful for the opportunity to have attended and participated in the American Cleft Palate Craniofacial Association (ACPA) Meeting that was held in Boston last week! Each time I attend this annual meeting, I feel as though it is a second home for me, coming together with existing friends in the craniofacial field and making new friends each time.
At ACPA, I embraced connecting with the Vanderbilt team I have worked with over the years with microtia and atresia. I am always happy to see members of our CARE Research team who have worked very hard on collaborative research for our microtia and atresia community over the past five years together. It is always wonderful to see Ear Community friends from Nemours Children’s, Seattle Children’s, Nationwide Kids, and Old Dominion U and of course everyone at the ACPA! THANK YOU to the ACPA for creating a much needed platform and a place for collaboration where medical professionals and advocates can come together to share our voices and work! Thank you for everyone’s advocacy!
I always look forward to seeing the incredible advocates in our community that include patients themselves as well as some pretty incredible organizations that help those in need, creating a home for so many! Whether it is a mother’s love for her child or a child who has overcome struggles along their journey, but is now advocating for others just like them – we all have a common goal of providing help, support, community and compassion that will ultimately lead to helping make someone else’s life easier or sharing the journey of hope and learning from each other.
Here’s to the advocates at ACPA and in the combined communities who make incredible change and provide the hope and help when in need! Advocates also include medical professionals and representatives who help market medical technology that can help make our lives better and along side researchers, writers and volunteers. Thank you for everyone’s advocacy – always! Thank you to the ACPA for always creating such a professional meeting for the craniofacial field and community! Executive Director Adam Levy always does such a great job for the ACPA!
Thank you,
Melissa Tumblin
Founder – Executive Director
Ear Community
- Advocates Melissa Tumblin, Amy Schefer, Dina Zuckerberg, Marly Euginio and Melissa McGowan present at the Annual ACPA Meeting in Boston.




























March 3rd was World Hearing Day!













The Ear Community announces it’s newest Board of Directors Member, Dr. Kripa Raman.
Meet Gael! Gael is eight years old and was born with unilateral microtia and aural atresia of his right ear. When Gael’s family recently moved to North Carolina, his mom, Alba, started noticing that he was not hearing everything. In between moments of him looking a little lost in conversation to questioning what she just said, she realized he was struggling with his hearing! Thankfully, because Gael is old enough to communicate, he was able to speak up about his hearing loss along with his mom paying attention to what Gael was missing out on and realizing what he needed. While trying out a loaner Baha (bone anchored hearing aid) through his audiologist at the UNC Medical Center Pediatric Audiology Department, both Gael and his mom realized how much better he could hear while wearing the Baha! Moving forward, when inquiring about obtaining a Baha of his own, Gael’s family realized they could not afford the cost of a bone anchored hearing device that could help him hear better. That’s when the audiology team over at UNC Health came together to help Gael find a way to hear!











It was a wonderful week long celebration for everyone embracing our rare cause on our special community day that continues being celebrated all month long! My favorite photos and tags we receive are of the children presenting in their classrooms, excited to share and educate about microtia and atresia and also about getting new ears and all about hearing loss! I love how so many are finding self acceptance and love during our special day. They are all so inspiring and brave!






























































































































































































