I am pleased to announce that on February 1st, 2012 my new global website called, Ear Community (www.EarCommunity.org) launched. The Ear Community website is a labor of love for me as my daughter, Ally, was born with Microtia and Atresia. This website contains everything one needs to know about Microtia and Atresia while touching on associated syndromes and conditions such as Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins. Our new website contains over 130 pages of emotional support, surgical options, hearing loss technology options, and a forum to help connect families across the globe and in your own community. The website is available to be translated into 48 different languages and contains hundreds of helpful photos. I founded Ear Community in order to promote educational awareness about Microtia and Atresia, help encourage advocacy, and help bring families together around the world. The first support group that I founded on May 20, 2010, called the “Microtia and Atresia Support Group” has over 2,000 members from all over the world. Of these members, in addition to individuals and families born with Microtia and Atresia (including Hemifacial Microsomia, Goldenhar Syndrome, and Treacher Collins), our members also include surgeons, doctors, ENTs, audiologists, audiology students, therapists, early intervention program providers, nurses, teachers, members from schools for the deaf and blind, and major organizations such as the Hearing Loss Association of America, the House Research Institute, AudiologyOnline, the Educational Audiology Association, Oticon Medical, Sophono, Cochlear, and many more. Within the first two days of our launch, Ear Community had over 500 visitors view our new website and over 2,200 pages were viewed. We are off to a wonderful start everyone! Thank you for your support and I hope you enjoy and benefit from our new global website, www.EarCommunity.org
Melissa and Family
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