Microtia & Atresia Books

Books for Explaining Microtia to Children

Video explaining Microtia and Atresia: I am Kylee and I just happen to have atresia/microtia!
Author:  Sarah Buhre (an Early Intervention teacher in California)

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“Ricky the rock that couldn’t Roll” and Tess, the Tin that wanted to Rock”

Both of these children’s books are written by Jay Miletsky and Illustrated by Erin Wozniak. These books help empower children on how to believe in themselves and help friends children who have hearing loss or who have friends who have hearing loss, helping children realize that they can be who they want to be even if  having hearing loss. https://www.amazon.com/Ricky-Rock-that-Couldnt-Roll/dp/0578198037   and   https://www.amazon.com/Tess-Tin-that-Wanted-Rock/dp/0578483890/

“Jojo’s Tiny Ear”

Author and illustrator, Stefania Munzi-Logus has written an inspiring book about her son Joseph, who was born with a hearing disability called microtia. Listen as Jojo teaches you about his tiny ear that just didn’t grow, his hearing aid, and most importantly how being disabled doesn’t mean he can’t play, travel, enjoy the ocean’s roar, and do all the things kids around the world do! https://www.amazon.com/Jojos-Tiny-Ear-Stefania-Munzi-Logus/dp/1956159053/ref=mp_s_a_1_1?dchild=1&keywords=stefania+munzi-logus&qid=1631886179&sr=8-1

“Wonder”
Author:  R. J. Palacio
I won’t describe what I look like. Whatever you’re thinking, it’s probably worse.

August Pullman was born with a facial deformity that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid—but his new classmates can’t get past Auggie’s extraordinary face. WONDER, now a New York Times bestseller, begins from Auggie’s point of view, but soon switches to include his classmates, his sister, her boyfriend, and others. These perspectives converge in a portrait of one community’s struggle with empathy, compassion, and acceptance.
In a world where bullying among young people is an epidemic, this is a refreshing new narrative full of heart and hope. R.J. Palacio has called her debut novel “a meditation on kindness” —indeed, every reader will come away with a greater appreciation for the simple courage of friendship. Auggie is a hero to root for, a diamond in the rough who proves that you can’t blend in when you were born to stand out.
http://www.amazon.com/Wonder-R-J-Palacio/dp/0375869026

There are more books in the Wonder series that are also available from R.J. Palacio
They are as follows:
“We’re All Wonders” – to order from Amazon, click here.  This is a wonderful book for younger children helping them see illustrated images.  Countless fans have asked R. J. Palacio to write a book for younger readers. With We’re All Wonders, she makes her picture-book debut as both author and artist, with a spare, powerful text and striking, richly imagined illustrations.
“365 Days of Wonder” – to order from Amazon, click here.
“Auggie and Me” – can be ordered from various online sites.

“The Adventures of Billie BAHA and Her Super Hero Friends”
Written by Jessica Jordan-Hogan and illustrated by Jacqui C. Smith
This book discusses how four year old Billie, who was born with bilateral Microtia and Atresia goes to school with her other friends who also have different types of hearing loss and wear different hearing aids, but are all super hearo’s.
https://www.billiebaha.com/

“Chelsea & Her Little Ear Make A New Friend”
and
“Chelsea’s New Ear”
Author: Simone Cheadle
Books written about Simone’s daughter, Chelsea, having Microtia and Atresia. The book discusses how Chelsea makes friends and also takes you through Chelsea’s surgery when getting her new ear.
http://kidshealth.schn.health.nsw.gov.au/chelsea-and-her-little-ear-make-new-friend

“Wonderfully Different Wonderfully Me”
Author:  Becky Zingale
An inspiring children’s book that empowers young minds to spread their wings and embrace their uniqueness.
https://wonderfullymebooks.com/

“Jaycee’s Little Ear”
Author:  Devan Lusk
A book written about a little girl’s journey with her little ear who has Microtia and Atresia.
https://www.bookemon.com/book-profile/jaycee-little-ear/732309
This book can also be found on Amazon.com

“Atresia Microtia and Your Child: How to Overcome the Hearing Impairment and Cosmetic Deformity Caused by Congenital Aural Atresia and Microtia”
Written by Dr. Joseph Roberson Jr., the foremost expert on atresia repair in the world, and Haley M. Roberson, PA-C, this book is designed to help parents and patients navigate a diagnosis of atresia and microtia; investigate current treatment options and determine which are best for your child; and compose the ideal treatment team and plan to ensure your child’s success. Ultimately, serves as a detailed guide in ensuring you child receives the best possible care and lifelong outcomes possible.

If you want your child to hear, to speak, to listen, and to thrive in a hearing world despite the hearing impairment he or she was born with—or if you are gathering information about CAAM and its treatment options—this book is for you.
https://smile.amazon.com/dp/1946615706/ref=sr_1_5?dchild=1&keywords=joseph+roberson&qid=1591300627&sr=8-5

Microtia: Sophie’s Little Adventure
Author: Dawn Calvert
https://www.amazon.com/Microtia-Sophies-Adventure-Dawn-Calvert/dp/1979722315

Someone Has a Little Ear – right sided Microtia
Author:  Devan Lusk
https://www.bookemon.com/book-profile/someone-has-little-ear-right-sided-microtia/735522

“Your Child’s Microtia: Innovative Ear Reconstruction”
A book written by Russell H. Griffiths MD, a recognized worldwide expert in reconstructing external ears (from congenital absence of the ear and ear canal (microtia and aural atresia) to traumatic and cancer related defects of the external ear), Beth Smith Jennifer Strikowsky (Editor) and CMI Sara Jarret MFA (Illustrator), has written this book specifically for parents of children with microtia and aural atresia. Specifically, he reviews background information about microtia, and treatment options including several surgical reconstruction techniques. He provides a detailed description on a novel innovative technique where the entire external ear and ear canal can be reconstructed in a single surgical stage. He explains treatment options for aural atresia including canalplasty and bone anchored hearing devices. He reviews associated conditions including hemifacial microsomia, Goldenhar syndrome, and Treacher Collin’s syndrome. Finally, he provides helpful tips on how to deal with health insurance companies who often try to deny coverage for this medially necessary problem. This book has beautiful illustrations that are easy to understand, and full page before and after surgery photographs. It is a must read for any parent who has a child with microtia and aural atresia.
https://www.amazon.com/Your-Childs-Microtia-Innovative-Reconstruction/dp/138968847X

“Isaac and Lilah – A story of similarities and differences”
Author:  Liz Jones
A book written for younger children explaining how we all have differences and similarities and that is okay.
http://www.microtiamingle.co.uk/new-book/

“Aoife and The Ear”
Author: The students of Room 3 at Claire Lilienthal School Madison Campus San Francisco, California.
A book written by these students to celebrate Aoife getting her new ear.
www.sensationalkids.ie

Books for Helping Explain Facial Deformities

“Children with a Facial Difference, A parents guide”
Author: Hope Charkins
Published by Woodbine House Inc.
*  After this free publication went out of print several years ago, craniofacial centers … writer who collaborated with cleft palate … Looking Forward published in 99 and …… Children with a Facial Difference: A Parent’s Guide is a 6 -page paperback … Charkins for parents of children with facial abnormalities such as cleft lip and …

“Babyface: A story of heart and bones”
Author: Jeanne McDermott
http://www.publishersweekly.com/978-1-890627-15-7

Article: “A New Face: Surgeon rolls out an approach to cleft birth defect: Hiding it”
Source: Chicago Tribune, August 8, 2009, news,0108190341
http://articles.chicagotribune.com/2001-08-19/news/0108190341_1_cleft-lip-cleft-palate-cleft-repair

Books for Explaining Hearing Aids to Children

“Oliver Gets FM”
“Oliver Gets Hearing Aids”
Author: Maureen Cassidy Riski, M.Ed.
A book written by a boy’s sister explaining his experience getting hearing aids and wearing them in school.
www.phonak.com

Books for Explaining Deafness and Hearing Loss

“If a Tree Falls”
Author: Jennifer Rosner through the Feminist Press.
A book about a woman who finds out the secret hearing loss through her ancestry and how they must have dealt with it.
http://ifatreefalls.com/

“On The Fence: The Hidden World of the Hard of Hearing”
Author: Mark Drolsbaugh
A book about diversity. Cochlear implants, sign language, stereo-types, self advocacy, experiences…anything goes and it is all in this book.
http://handwavepublications.com/

“The Book of Choice: Support for Parenting a Child Who Is Deaf or Hard of Hearing”
Author: The Hands & Voices Organization
A book about choices, experiences, what could have been different, and look what I have become despite being deaf and or hard of hearing.
www.handsandvoices.org