The CARE Team presents at the 2025 ACPA Annual Meeting
What a wonderful time attending the ACPA – Annual American Cleft Palate Craniofacial Association’s Meeting, last week in Palm Springs, CA! It was wonderful seeing so many friends, colleagues and advocates again! I am always reminded at ACPA of how grateful I am knowing how many medical professionals, researchers and advocates continue working on what is needed for our children and families!
This year, I am especially proud of our panel that presented on the importance of integrating family stakeholders when it comes to research and community outreach for rare causes. Our panel presented on “Enhancing Craniofacial Research: Integrating Family Stakeholders”, sharing how important collaboration is between both family stakeholders and with medical professionals. Our CARE Team also made many informative presentations during this year’s meeting!
I am so pleased with the important and much needed work our CARE Team has completed over the past 5 years on our grant project, which has helped improve the caregiver experience for microtia, atresia and craniofacial microsomia families! When navigating your way as a parent of a child who is born with a rare congenital anomaly, there is often a lack of information making it difficult to find answers, including limited research being available or knowing where to find it, not to mention being given any kind of guidelines that can help families find their way. The information that our CARE Team has gathered and presented on has absolutely made improvements for caregivers, which in turn will help make things easier for the next families and medical professionals as we travel our journeys, together.
Thank you to everyone on our CARE Team for all the good we do together! Thank you to Adam Levy and everyone at the American Cleft Palate Craniofacial Association for creating such an important meeting for so many to come together annually and share to make things better!
Founder – Executive Director
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- The CARE Team presents on “Enhancing Craniofacial Research: Integrating Family Stakeholders”.
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- The CARE research team
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- Amy Schefer and Melissa Tumblin at ACPA
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- Melissa Tumblin (Ear Community), Amy Schefer (Advocate Angel) and Dr. Carrie Heike (Seattle Children’s)
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- Dr. Angelo Leto Barone (Nemours Children’s Health) and Melissa Tumblin
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- Melissa Tumblin and Dr. Michael Golinko (Vanderbilt)
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- Dr. Steven Goudy (Children’s Health Atlanta) and Melissa Tumblin
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- Melissa Tumblin and Diego Gomez (medical school student)
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- Aaliyah Booker and Khadija Z. Moten (CCA Kids) and Melissa Tumblin (Ear Community) and Amy Schefer (Avocate Angel)
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- Roger Rickard and Melissa Tumblin
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- Erica Klauber (CCA Kids) and Amy Schefer (Advocate Angel) and Melissa Tumblin (Ear Community)
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- CARE Team
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- Dr. Angelo Leto Barone (Nemours Children’s Health) and Melissa Tumblin (Ear Community) at ACPA
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- ACPA advocates
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- ACPA advocates
About Melissa Tumblin
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