Archives for May 2025

The Cutchin family gives back to a nonprofit that is near and dear to their hearts – The Ear Community Organization

Poppy is the star of the show at the D & L Nursery Customer Appreciation Day and fund raiser for the Ear Community Organization. Poppy and Family shared their story and why nonprofit organizations like Ear Community matter when you cannot find the answers you are looking for. (May 2025, Ocklawaha, FL)

The Cutchin Family run the D & L Nursery in Ocklawaha, Florida where they hosted their annual Customer Appreciation Day in May. Each year, the nursery picks a charity organization to help give back to that they are grateful to, just like they are grateful to their customers. This year, they selected The Ear Community to give back to to say “thank you” for being there for them when their daughter was born & they couldn’t find the answers they were looking for.

In 2019, Katie & David Cutchin had their beautiful daughter, Poppy. They noticed one of her ears was underdeveloped, but due to the rarity of Microtia & Atresia, their doctors at the hospital were not able to provide much information regarding what it could be or why her ear canal was closed.

Katie explains that “Being a new mom and seeing that your baby has a congenial anomaly that doctors can’t explain sends you on an emotional roller coaster and down a rabbit hole of google searches, looking for the answers the doctors didn’t have. While self researching, we discovered that our daughter had what is called Microtia and Atresia, yet there wasn’t a whole lot of information about it until we happened to come across the Ear Community’s website!” In a testimonial for the organization, Katie explains that “It was during this time her family was fortunate to be able to have a conversation with the organization’s Founder, Melissa, and be put in touch with other other families who are on the same journey. Finding the Ear Community Organization and being able to utilize the information available from the Ear Community, helped our family be able to advocate for Poppy, locate doctors who are familiar with her condition, have proper hearing testing done, and form a plan of action for better hearing with the help of a hearing device that wasn’t mentioned to us. We were able to gain valuable information on what the future may look like for Poppy should we opt for surgical reconstruction or a bone anchored hearing device. Without the Ear Community, we truly believe we would have been lost and not have been able to advocate as well for our daughter which could have led to speech delays, trouble with learning in school, and added stress to the family. It is invaluable to have a place to connect with other parents & learn about other people’s experiences.”

The Cutchin Family’s story is very similar to that of the Tumblin Family’s, which is why the Tumblin Family founded Ear Community Organization in 2010. As a result, Ear Community has helped microtia families learn more about this rare cause and the options available to those with hearing loss because of these conditions, helping them know they are not alone. “The Ear Community has been essential for many families like ours in finding the necessary resources for our loved ones living with Microtia and/or Atresia. They are an amazing non profit that we are fortunate to have learned about! Ear Community was created in response to the lack of knowledge and support for families in need of information regarding these conditions and how to get their loved ones the help they need. With these congenital anomalies being so rare, knowledgeable doctors are few and far between and we are often the ones to inform our pediatricians of what Microtia and Atresia is and how we need to proceed with treatment. The funds donated to the Ear Community help fund research on Microtia and Atresia, provides hearing solutions for those who cannot afford it or were denied through insurance, and provides scholarships to those with Microtia Atresia to continue their education through college.

Thank you to Katie, David & Poppy Cutchin & Family for hosting a fundraiser in May at their nursery for our Ear Community Organization! It was a beautiful day for Customer Appreciation Day and the fundraiser for Ear Community! From organizing raffles and a silent auction to organizing food and lots of fun activities at the nursery that included tree art demonstrations and presentations and lots of helpful tips on caring for plants and trees and gardening! THANK YOU to the artists that gave the demonstrations. They donated their time, travel expense and the trees used in their demonstrations. The artists trees alone brought in a total of $510.00 with a total donation amount of $2,678.00, including donations, going to the Ear Community that was raised! A very special thank you to the Cutchin Family (David, Katie, Poppy and Family) and everyone at the D&L Nursery including Sarah, Charlene, Mary Lou, Patty, John Clayton, Norine Catich, Jeff Ketts, MaryJo Magargee, Eddy Fernandez, Jim and Ray Blakely, Darry and Barbara, Connie and Nanci, Chris Cosenza and Ken Sandifer! It takes a lot of planning and everyone’s help to make these special days possible! Thank you especially for helping give back to the Ear Community! D&L Nursery also lined up this special day honoring World Bonsai Day, which takes place every May 10th! And, congratulations to David and Katie on the birth of baby Mack just last month! Poppy is so excited to have a baby brother!

Here are some fun memories from this special day organized by Poppy and her family and friends!
Thank you, Katie, David and Poppy and Everyone!
Melissa Tumblin
Ear Community

The Ear Community Organization Turns 15 Years Old – May 20, 2025

The Ear Community Organization celebrates 15 years of service to the microtia and atresia community on May 20th, 2025.The Ear Community Organization turned 15 years old on May 20th, 2025!🎉 ❤️👂

Before Ear Community was founded, our microtia and atresia families struggled to come together, learn about all of their options, receive the support that was needed and find the answers we all are looking for! When Ally Tumblin was born in 2009, the Tumblin family struggled to find the answers they were looking for, but wanted to share all that they had learned with everyone in order to help make things easier for the next family who has a baby born with microtia and aural atresia! In 2010, the Tumblin Family started the Microtia and Atresia Support Group on Facebook. Within one year, online support group on FB/Meta became a global group with families joining from across the globe. In 2011, Melissa Tumblin launched the Ear Community website, which has become a portal of information for microtia and atresia families and is translatable in nearly 50 different languages. It was in 2012, that the Tumblin Family founded the Ear Community Organization to help give back and so no other family who has a baby born with microtia and atresia would ever feel alone. Ear Community created a safe place for children and adults who have microtia and atresia, including providing a place of belongingness and inclusivity where everyone can come together in the same situation.

Since founding Ear Community in 2010, Ear Community has hosted over 120 events bringing over 15,000 people together in the United States, Canada, Denmark, South Africa, the UK and Spain! Our organization has donated nearly 200 bone anchored hearing devices and awarded nearly 30 college scholarships. Ear Community has championed genetic research on why microtia happens and which chromosome is responsible for this congenital anomaly including working on research for our community to improve the caregiver experience for our families. In addition, Ear Community introduced Federal Legislation known as Ally’s Act – which would get bone anchored hearing devices covered by private insurance from birth to age 64 and established National Microtia and Atresia Awareness Day taking place every November 9th with the world embracing our special community day! We look forward to seeing everyone at an Ear Community picnic near you! Our organization is also proud to have two funds made possible that help children who have microtia and atresia:  Pax’s Eyewear Fund helps children who have microtia and atresia obtain eyeglasses and sunglasses and Pax’s Ear Fund that helps to reimburse audiologists for the fitting and programming fee when private insurers deny their patients this service. Pax is a little boy who has helped many children and adults in our community live better quality lives! Our organization is grateful to all of our donors, including the Pax’s Family!

If you enjoy giving back to nonprofit organizations and like what the Ear Community Organization does, please support the work we do by making a donation that will help our organization continue our mission to help more microtia and atresia families! ❤️

Thank you for everyone’s support to our organization over the past 15 years! It is always an honor and something quite special to serve our community!

Melissa Tumblin
Founder – Executive Director
www.EarCommunity.org/donate

Ear Community and the CARE Team Study present at the 2025 ACPA Annual Meeting

Ear Community and the CARE Study Team present at the 2025 ACPA in Palm Springs, CA

The CARE Team presents at the 2025 ACPA Annual Meeting

What a wonderful time attending the ACPA – Annual American Cleft Palate Craniofacial Association’s Meeting, last week in Palm Springs, CA! It was wonderful seeing so many friends, colleagues and advocates again! I am always reminded at ACPA of how grateful I am knowing how many medical professionals, researchers and advocates continue working on what is needed for our children and families!

This year, I am especially proud of our panel that presented on the importance of integrating family stakeholders when it comes to research and community outreach for rare causes. Our panel presented on “Enhancing Craniofacial Research: Integrating Family Stakeholders”, sharing how important collaboration is between both family stakeholders and with medical professionals. Our CARE Team also made many informative presentations during this year’s meeting!

I am so pleased with the important and much needed work our CARE Team has completed over the past 5 years on our grant project, which has helped improve the caregiver experience for microtia, atresia and craniofacial microsomia families! When navigating your way as a parent of a child who is born with a rare congenital anomaly, there is often a lack of information making it difficult to find answers, including limited research being available or knowing where to find it, not to mention being given any kind of guidelines that can help families find their way. The information that our CARE Team has gathered and presented on has absolutely made improvements for caregivers, which in turn will help make things easier for the next families and medical professionals as we travel our journeys, together.

Thank you to everyone on our CARE Team for all the good we do together! Thank you to Adam Levy and everyone at the American Cleft Palate Craniofacial Association for creating such an important meeting for so many to come together annually and share to make things better!

Melissa Tumblin
Founder – Executive Director
Ear Community

In Honor of Bone Anchored Awareness Day – Ear Community Advocates for Ally’s Act in Washington, D.C.

Sean Callinicos and Ryan McDevitt advocating for Ally’s Act in Washington, D.C. on Friday, May 2nd, 2025.

In honor of Bone Anchored Awareness Day, also known as “Good Vibrations Day,” our Ear Community Organization has been advocating for Ally’s Act, a federal piece of legislation ensuring private insurers cover Bone Anchored Hearing Systems & Cochlear Implants, for children & adults from birth to age 64!

Yesterday, May 2nd, Ear Community’s lobbyists/advocates, Sean Callinicos & Ryan McDevitt, spent the day on The Hill in Washington, D.C. advocating for Ally’s Act, meeting with Congressional & Senate offices! It is incredibly important that this bill passes for many of the Deaf & Hard of Hearing Communities, including our community of microtia & atresia children & adults! Sean & Ryan donated their time yesterday to meet with Congressmen John Rutherford (R-FL) & Glenn Grothman’s (R-WI) offices, including Senator Marsha Blackburn’s (R-TN) office. Thank you so much for your advocacy and for helping fight for what our community needs!

Thank you to the microtia & atresia families & the medical professionals who wrote letters, asking for support of this bill! These letters were personally hand carried & given to the offices that Sean & Ryan met with!

While these hearing devices are covered by private insurers, they are frequently denied by them as well, creating significant barriers to care. These denials often override the medical determinations made by physicians, effectively placing critical healthcare decisions in the hands of insurers rather than professionals.

When private insurers only cover some people with insurance & yet deny others who are also insured under the same to similar plans – it creates uncertainty for consumers by establishing financial barriers for those who already pay for private insurance. Especially, when specific medically necessary devices are purposely “excluded from coverage”. Private insurers frequently override the medical diagnosis provided by our physicians when denying coverage for hearing devices, creating additional barriers for patients in need. Passage of Ally’s Act would make this coverage consistent!

WE WANT ALLY’S ACT TO PASS!

Thank you again to Sean and Ryan for advocating for our community! Ryan’s daughter, Brooke, also has microtia & atresia just like Ally does, the little girl behind Ally’s Act. Thank you to The Ear Community Organization, the many advocates and endorsers who continue to advocate for Ally’s Act to pass!

Here are some of our amazing advocates meeting with members of Congress and the Senate about why Ally’s Act is needed!

Melissa Tumblin
Ear Community
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