TODAY IS EAR COMMUNITY’S 13TH BIRTHDAY!
Thirteen beautiful years of paving the way for Microtia and Atresia families, advocacy and awareness and so much more! On May 20th, 2010, I sat down at my laptop and decided to make a difference in the world by helping other families just like ours. We’ve come a long way since that first day of starting the Microtia and Atresia Support Group on Facebook!
Since being founded, we’ve hosted over 125 events in multiple countries, donated over 155 hearing devices, awarded 21 college scholarships, championed genetics research and found answers for microtia, inspired Federal legislation to be introduced known as Ally’s Act, collaborated with biotherapeutic companies and the FDA on research for 3D printed regenerated ears, improved general awareness about our rare cause, established National Microtia and Atresia Awareness Day along with legislation being introduced for November 9th, our website alone has helped hundreds of thousands of people all over the world and so much more!
Thank you to all of the amazing families, friends, sponsors, medical professionals and community members who have embraced our organization and supported us and our mission! It means the world to our little amazing organization!
Happy Birthday Ear Community! You are my third child that I will always love just as much as my two beautiful daughters, Hailey and Ally!
❤️👂 If you enjoy supporting nonprofits, consider giving back to the Ear Community Organization helping us continue our mission to help the microtia and aural atresia community.
– Melissa Tumblin
Founder of Ear Community
www.EarCommunity.org
During the first week of May, the CARE Study Research Team attended the ACPA, American Cleft Palate Association, conference in Raleigh, North Carolina! Our CARE Team has been working on our grant project for the past four years and was finally able to come together in person! Our research team did an amazing job at the conference presenting nearly 20 total presentations, including presenting during the poster session. Our team’s presentations included feeding techniques to what the caregiver’s concerns are as well as surgical options from medical providers. We also enjoyed visiting the Dental School at Chapel Hill where we had an all day meeting!
The CARE Team is comprised of a interdisciplinary group of more than 20 members from 7 countries including members who are advocates, researchers, and healthcare providers. Our team works out of two primary sites – Seattle Children’s Research Institute and the University of Bristol, West England in the UK. Our research team also includes a number of subcommittees and an Advisory Council as well. Ear Community is proud to represent the microtia and atresia community during this grant project!
While at the American Cleft Palate Association conference, we were fortunate enough to meet some pretty amazing people! – Advocates and partner nonprofit organizations as well as getting the chance to catch up with some amazing medical professionals that Ear Community has gotten to know over the years!
Amelia Drake from Chapel Hill and Roger Rickard of VoicesInAdvocacy who has been incredibly supportive in advocating for important pieces of legislation like Ally’s Act, H.R. 2439/ S. 1135 that matter to the communities we serve! A special thank you to the ACPA for sharing about Ally’s Act, H.R. 2439 & S. 1135 during the opening reception and throughout the entire conference! It was also great to finally meet the members of the ACPA Advocacy Board during our meeting!
































