Archives for May 2020

Ear Community celebrates 10 years today – It’s been a decade of helping advocate for Microtia and Atresia families

Today, May 20, 2020, our Ear Community Organization turns 10 years old!

IT’S BEEN A DECADE!
Ten years ago today, months after my youngest daughter, Ally, was born with Grade III Microtia and Aural Atresia of her right ear, I sat down at my laptop and decided to start a support group for Microtia and Atresia families right here on Facebook called the Microtia and Atresia Support Group. Today, our support group has close to 9,000 members in it. One year later, on June 11, 2011, my family hosted our first Microtia family picnic in Denver, Colorado where we had over 100 people attend including one Microtia repair surgeon. The following year on August 16th, 2012, Ear Community became a nonprofit organization. Since May 20th, 2010, we’ve never looked back!

Over the past decade, our organization has brought nearly 15,000 people together at 70 of our events here in the United States and in other countries. Our educational website has helped tens of thousands of families and medical professionals connect and learn more about Microtia and Atresia. We have helped children and adults in need who have hearing loss by donating over 130 bone conduction hearing aids. We have helped 15 college students with college scholarships. We’ve been to the FDA, initiated genetic research on Microtia and Atresia…we’ve advocated on Capitol Hill and even had legislation introduced that will help tens of thousands of children and adults obtain insurance coverage for bone anchored hearing aids and cochlear implants.

* A special thank you to Heidi Jeffs who not only is my only Ear Community employee besides myself, but for all of her passion and energy to help me help Ear Community do the good that our organization does! Thank you to our support group admins for all of their help and to all of our picnic host families who have helped make our picnics happen over the years! Thank you to our board members and to our donors too, for your tremendous support to our organization!

A very special thank you to our amazing sponsors who have supported Ear Community all these years, helping educate about all options and put smiles on our community’s families at our events!
Platinum Sponsors:  Cochlear Americas and Oticon Medical
Silver Sponsors:  Med-EL, Stryker and Medtronic ENT

💙👂🦋💙👂🦋💙👂🦋💙👂🦋💙

 

Thank you for being a part of Ear Community all these years!
Melissa Tumblin
Founder – Executive Director
and our entire board of directors!
www.EarCommunity.org

Ear Community and Oticon Medical help 8 year old New Jersey girl hear during COVID-19

Pictured: Isabella with her mom at her audiology fitting for her 2 donated Oticon Medical Pontos in New Jersey, April 8th, 2020.

Meet Isabella, Ear Community’s newest bone anchored hearing aid recipient! Isabella lives in New Jersey with her family, originally moving from Venezuela. She is 8 years old and was born with bilateral Microtia and Aural Atresia. As Isabella started school, she began struggling with her hearing due to having hearing loss in both ears. As it turns out, Isabella has many advocates looking out for her, who are in her corner.

Isabella is in 1st grade. Shortly after beginning school, Isabella was able to have a hearing test conducted through the school system. Isabella’s school audiologist, Dr. Stephanie Garcia, helped Isabella obtain two loaner Oticon Medical Ponto 3 Superpower hearing devices to help her have access to sound at while at school. Isabella thrived, she just lit up with positive facial expression and truly enjoyed hearing sound through these hearing devices. Isabella’s teacher even reported her participating in classroom discussions, how she wanted to help others and how social she had become.  Isabella also had access to the Ponto 3 Superpowers at home as well. Her parents said that she wore them all the time from morning until nighttime.  They enjoyed being able to see their daughter participate and communicate with everyone around her.

Sadly, the loaner period for these two bone anchored hearing devices ended and Isabella was back to not being able to hear at both school and at home. Dr. Garcia went on a mission to help Isabella obtain access to sound, but this time permanently. Dr. Garcia teamed up with Dr. Laura Sylvia (an educational audiologist and speech-language specialist) along with Mrs. Kerry Shelby (a teacher of the Deaf and Hearing Impaired) to find resources to help Isabella so she didn’t fall through the cracks and revert back to struggling to participate in a hearing world. In February 2020, Drs. Garcia and Sylvia along with Ms. Shelby reached out to our Ear Community Organization to see if we could help.

After receiving Isabella’s application for a hearing device, Ear Community’s Board of Directors were excited to help Isabella obtain two Oticon Medical Ponto 4’s, including a microphone for help hearing her teacher in the classroom, in social situations and while at home. Our organization is happy to help Isabella hear her best so she can thrive, everyday! Shortly after Ear Community offered to help Isabella obtain hearing devices, the world slowly began shutting down from the COVID-19 pandemic, putting Isabella’s fitting on hold for her new hearing.

Through the passionate work from our friends at Oticon Medical and the need to help Dr. Garcia, Isabella was fitted with her Ponto 4’s on April 8th, 2020. A special appointment was scheduled, even during a pandemic, to help Isabella hear! Ear Community is honored to be a part of the passionate team that made Isabella’s hearing a priority during this uneasy time in the world.

A very special thank you to Alan Raffauf, Vice President of Marketing and Operations for Oticon Medical US, for choosing to donate the two new Oticon Medical Ponto 4 hearing devices and microphone to Ear Community so that they could be donated to help Isabella hear. Thank you to Beverly Ostrowski, Director of Customer Service, with Oticon Medical for helping ship Isabella’s hearing devices. Oticon Medical is a well-respected international hearing device manufacturer that is a part of the “William Demant Group [which has] 100-plus years of experience in audiology and sound processing and established manufacturing and logistics infrastructure. We also wish to say “thank you” to Drs. Garcia and Sylvia and Mrs. Shelby for their tireless efforts to help Isabella hear. Ear Community also wishes to thank all our donors who choose to donate to our cause, helping make life-changing moments like these happen for children and adults in our community.

Isabella – we hope the world opens up to you now that you can interact through sound with all those around you. We are so happy for you and proud of how far you’ve come thanks to hearing device technology and some love and advocacy in the world. Thank you for allowing us to be a part of your better hearing journey. We wish you the very best!
Melissa Tumblin
Founder – Executive Director
The Ear Community Organization
www.EarCommunity.org

Translate »