Archives for February 2015

How Andrew’s audiologist helped him hear better with Oticon Medical and Ear Community…

Andrew Perry (born with BMA and Treacher Collins), recipient of a new Oticon Medical Ponto Pro through Ear Community on Feb. 9th, 2015.

Andrew Perry (born with BMA and Treacher Collins), recipient of a new Oticon Medical Ponto Pro through Ear Community on Feb. 9th, 2015.

Meet Andrew Perry, an almost 14 year old who was born with Treacher Collins and bilateral Microtia and Atresia.  Andrew lives in Atlanta, Georgia with his father, Clyde, and his younger sister, Sara.  Andrew enjoys spending time with his friends and family. However, Andrew struggles with hearing conversations and lessons in the school classroom due to having a maximum conductive hearing loss in both of his ears.  Andrew struggles when trying to participate in conversations because he hears too many background sounds, causing noise, that get in the way of the words and communication that he needs to be hearing in order to understand well.  Everything blends together for Andrew.  “In addition to this, straining to hear can make someone with a hearing loss tired throughout the day,” says Melissa Tumblin, Founder of Ear Community.

Even though Andrew had one hearing device already (a Ponto Pro manufactured by Oticon Medical), he still struggled to hear everything, each day.  While not being able to afford purchasing a new BAHA, Andrew’s father, Clyde, did apply through their insurance provider, but were denied coverage for an additional BAHA.  Andrew’s father, Clyde, had noted that “Andrew’s academic performance had declined significantly over the past several months and contributes this to his inability to follow classroom instruction successfully.” Andrew’s audiologist, Dr. Brittany Whitlock, Au.D., CCC-A, of  Pediatric Ear, Nose & Throat of Atlanta, P.C., knew that Andrew still needed help with his hearing regarding localizing sound with both ears.  Dr. Whitlock understands that “the brain relies on equal input from both ears in order to separate noise from speech signals.”  In an effort to help Andrew, Dr. Whitlock discovered a nonprofit organization, called Ear Community, that can often help individuals born with Microtia and Atresia obtain hearing devices when in need, and so Dr. Whitlock applied for a hearing device for Andrew.

On February 9th, 2015, Andrew was  fitted with a second Ponto Pro hearing device that was donated by Oticon Medical through the Ear Community Organization.   “By allowing Andrew to be aided with two BAHA hearing devices, he will be given the opportunity to detect soft speech sounds in both ears, helping improve his ability to localize sound and articulation and follow classroom instruction in background noise to improve his academic performance,” says Dr. Whitlock.   Already during Andrew’s first week back to school while being aided with two Ponto Pro processors, he has noticed a difference in being able to hear better!

Ear Community would like to thank Dr. Brittany Whitlock for finding our organization and helping Andrew apply for a hearing device to help him hear better.  Ear Community wishes to say a very special thank you to Alan Raffauf, Vice President of Marketing of Oticon Medical, for donating this hearing device to Ear Community so that the foundation could help Andrew.  Thank you for your support and for helping Ear Community continue with its mission of helping the Microtia and Atresia community, including individuals born with Treacher Collins as well. While the Ear Community organization is proud to have donated Andrew’s new Oticon Medical Ponto Pro, none of this would have been possible without Oticon Medical donating this amazing hearing device to Ear Community to begin with. Oticon Medical believes in helping individuals with hearing loss so that they can live a better quality of life. Oticon Medical is a well respected international hearing device manufacturer that is a part of the “William Demant Group [which has] 100-plus years of experience in audiology and sound processing and established manufacturing and logistics infrastructure.”

Andrew, from all of us here at Ear Community, we wish you the best with better hearing and in doing so much better in school! “I am always amazed at how much of a difference a hearing device can make in someone’s life,..especially if they are given the opportunity and the chance to obtain one when they couldn’t at first,” says Melissa Tumblin of Ear Community.  Congratulations on hearing your best Andrew!

Thank you,
Melissa Tumblin
Founder and Executive Director
Ear Community
www.EarCommunity.org

2015 Ear Community Picnics and Events

2015 Ear Community Microtia and Atresia Summer Family Picnics

Ear Community hosts picnics every year around the world helping bring Microtia and Atresia families together.  This year’s picnics will take place in Australia, Denmark, Pennsylvania (USA), Colorado (USA), Washington (USA), and South Africa.  It is very exciting for many families! Everyone enjoys attending our picnics and our Ear Community picnics always offer such a wonderful opportunity for Microtia and Atresia families to come together, share experiences with each other, and maybe even make a new friend.  Medical professionals such as world renown Microtia and Atresia repair surgeons, anaplastologists, ENTs, audiologists, and therapists along with the world’s leading hearing device companies all come together to mingle with us at our picnics, helping educate us on all of our options including hearing loss.

We look forward to seeing you at our Ear Community picnics this year!

Melissa Tumblin,
Founder and Executive Director of Ear Community
Founder of the Microtia and Atresia Support Group on Facebook

2015 Ear Community Picnics

EHDI Meeting
Early Hearing Detection and Intervention
March 8th thru 10th, 2015 in Louisville, Kentucky

The Ear Community Organization is very excited to attend the EHDI (Early Hearing Detection and Intervention) Meeting that will take place this March 8th thru the 10th in Louisville, Kentucky! This will be Ear Community’s very first conference/meeting where attending as an exhibitor! Parents and medical professionals will be in attendance hoping to learn more about hearing loss and all options. We’ll be representing Microtia and Atresia and all options!

Please stop by and visit us at booth #41. We look forward to seeing you at EHDI this year!
– Melissa Tumblin
Founder and Executive Director of Ear Community
www.EarCommunity.org

Australia Ear Community Picnic
Melbourne, Australia
Date:  Saturday March 14th, 2015
Time:  11AM to 3PM
RSVP to Lisa and Melissa at:  AustralianEarCommunityPicnic@hotmail.com

Denmark Ear Community Picnic
Hellerup, Denmark

Date:  Sunday, May 31st, 2015
Time:  11AM to 3PM
RSVP to Melissa at:  DenmarkEarCommunityPicnic@gmail.com
*  This picnic will be in collaboration with Decibel.  Decibel is the national organization for children and young people with hearing loss. The association counts both parents, relatives, professional, private and business members.  Decibel consists of a board that is responsible for the overall management of the association and a secretariat in charge of the daily performance.

Decibel er landsforeningen for børn og unge med høretab. Foreningen tæller både forældre, pårørende, professionelle, private- og erhvervsstøttemedlemmer.  Decibel består af en bestyrelse, der står for den overordnede ledelse af foreningen og et sekretariat, der står for den daglige udførelse.

Pittsburgh Ear Community Picnic
Pittsburgh, Pennsylvania
Date:  Saturday June 13th, 2015
Time:  11AM to 3PM
RSVP to Kim and Melissa at:  PittsburghEarCommunityPicnic@gmail.com

Colorado Ear Community Picnic
Broomfield, Colorado 

Date:  Saturday, July 25th, 2015
Time:  11AM to 3PM
RSVP to Melissa and Audra at:  ColoradoMicrotia@hotmail.com

Seattle Ear Community Picnic
Seattle, Washington
Date:  Saturday, August 8th, 2015
Time:  10AM to 2PM
RSVP to Jodi, Jamie, and Melissa at:  SeattleEarCommunityPicnic@gmail.com

South Africa Ear Community Picnic
Johannesburg, South Africa 

Date:  Saturday, October (TBD)
Time:  11AM to 3PM (TBD)
RSVP to Mark and Melissa at:  SouthAfricaEarCommunityPicnic@gmail.com

Finding confidence and new hope through the Ear Community Organization

Hi Everyone! One of our support group members and a very dear friend of mine would like to share her story with all of us. Here it is:

Camilla Gilbert thanks the Ear Community Organization for helping her find confidence, a brighter future, and for finding a hearing device that is right for her.

Camilla Gilbert thanks the Ear Community Organization for helping her find confidence, a brighter future, and for finding a hearing device that is right for her.

Hi, My name is Camilla Gilbert.
I was born with a congenital deformity call Bilateral Microtia type III, whichaffected the outer ear not to fully develop. Furthermore Microtia affected my hearing due to the lack of an ear canal on both ears and I was categorized as a deaf person. Living with Microtia during my childhood, adolescence, and young adulthood years I developed low self-esteem, isolation, and confusion. Furthermore I did not want to associate with members of the deaf and Hard of Hearing culture because they were viewed as weak or impaired individuals within our society. I just wanted to be considered “normal” within the hearing world and this led me to cover my ears and hearing aid with a headband every day until the age of 26. However in 2005 I began to change my viewpoint of my deafness and investigated who I was as an individual.

Previously I never knew name of my condition, I just referred to it as being different and wore a hearing aid and my ears were closed. I began my quest by researching and analyzing information online to determine the name of my condition. After a few different searched online I discovered the medical terminology for my deformity, Microtia. This began the process of locating others in the area that was born with Microtia; this led me to Ear Community.
Ear Community is a non-profit organization that offers supportive community for individuals who were born with Microtia and other related conditions surrounded around hearing loss. Ear Community’s website provided me with helpful articles related to different surgery procedures, new technologies, and advocacy information. Furthermore I was able to connect with others who were blessed with Microtia all over the world. I accepted and was comfortable with living with Microtia and started reaching out to others through Facebook on the Ear Community page. This led to group discussions and empowerment for myself and to others.

Ear Community began to have different picnics over the world and in 2013 there was one hosted in Columbus, Ohio. I was excited to go and was in amazement when I arrived at the picnic. I was surrounded by others of all ages with Microtia just like me. Children were playing and parents were asking professionals and adults with Microtia for advice. I felt like a superstar at the event for a condition that I used to be ashamed of. During the picnic I was able to engage with my peers, which included an individual by the name of Justin Bays. During our conservation he educated me on different technologies options that Microtia individuals have; one included the Oticon Medical Ponto Hearing Aid Implant. I was already aware of this new technology however to see and interact with someone current uses the device and spoke highly of it was inspiring. I expressed my concerns about getting the device due to fear of having surgery but Justin Bays ensured me I would be fine and that I would be happy with the digital sound quality.

Ten months later in April I was in the surgery room getting my first Oticon Medical Hearing Aid Implant and got my second device in August of the same year. If I would have never gone to the Ear Community’s picnic in Columbus, Ohio surrounded by my Microtia peers I may have never had the courage to have the surgery. My experience at this group event changed my life for the better and was very memorable.

Thank you so much for sharing your story with us Camilla! It was great meeting you in Ohio two summers ago at our Ear Community picnic.  Camilla proudly wears the Oticon Medical Ponto Plus sound processor to hear life better because sound matters!  Camilla was also Ear Community’s first college scholarship recipient and her family is a big supporter of the Ear Community Organization.  Camilla is also a wonderful single mom too and is on her way to graduate school!  Justin Bays is a member of Ear Community’s Board of Directors.  Thank you Justin for passing on the information…you helped change someon’es life at our picnic!

We are so proud of you Camilla!
– Melissa Tumblin
Founder and Executive Director of Ear Community
www.EarCommunity.org

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