Cochlear, Oticon Medical, and Sophono Sponsor the First Annual Microtia and Atresia Family Picnic in Yonkers, New York Through Ear Community…

With great pleasure I would like to thank Cochlear Americas, Oticon Medical and Sophono for sponsoring our summer picnic that was just held in Yonkers, New York for Microtia and Atresia families (including Hemifacial Microsomia, Treacher Collins and Goldenhar Syndrome families).  Our event would not have been possible if it were not for our sponsors.  Thanks to you for sponsoring our picnic, our kids had a wonderful time playing with each other, were able to enjoy some fun entertainment and activities and enjoy a delicious catered lunch.  Thank you also for helping educate our families more about hearing loss and the technology available that can help make hearing loss manageable.  I would also like to thank Oticon Medical for making it possible for me to be at the NY picnic so that I could meet so many of the families whom I have been speaking with since founding our support group.  Thank you!  A little over 100 people attended our picnic this Saturday!  We had families travel from Ohio, New Jersey and from all over the state of New York including a family from Columbia.  In addition to our families and individuals who attended our picnic, Dr. Thomas Romo and Dr. Russell Griffiths were also among our families.  Dr. Thomas Romo is one of NYC’s finest plastic surgeons, is the Founder of the Little Baby Face Foundation and the Director of facial and reconstructive plastic surgery at Lenox Hill Hospital and Manhattan Eye, Ear and Throat Hospital.   Dr. Russell Griffiths has his private practice in Boise, Idaho and specializes in a variety of facial plastic surgery including ear reconstruction.  Thank you to Alan Raffauf (VP of Mktg. for Oticon Medical), Kerry Roesch (North American District Sales Manager for Sophono), and Alison Mendez (NY Territory Sales Rep for Cochlear) for being at our picnic.  I would like to thank Daisy Alcivar Garrison for being our NY picnic host and for organizing our event.  Daisy would like to carry on the torch and host a picnic in New York for Microtia families every year.  Thank you to Pee Wee the clown who was our awesome magician, snow cone maker, DJ, face painter/balloon maker and popcorn maker.  Yep, Pee Wee did it all!  The kids had a wonderful time listening to him and dancing and playing games.  Pee Wee gave us an amazing discount on everything he did for us which is very much appreciated. I would also like to say a very special thank you to Marcos of Valentina’s Pizzaria who catered our delicious Italian lunch (rigatoni, chicken parm, garlic balls, salad, french fries, and drinks). Marcos not only catered our event at his cost (helping give Oticon Medical a 50% discount for covering the food), but Marcos snuk in some very delicious cannolis as a special treat for all of the parents to eat and asked a friend to cater some delicious cupcakes for the kids. Marcos applauds what we are doing for the Microtia/Atresia community and he has offered to cater next year’s NY picnic for FREE and he also would like to do this for many years to come to support Ear Community and the Yonkers, NY community. Marcos and PeeWee, thank you for helping make our Microtia/Atresia picnic in New York so special for these families and especially for our kids. Thank you for giving back to the community!  I would also like to thank Build-A-Bear for donating a fully stuffed and dressed bear that one lucky little girl won during our raffle.  I have a feeling this little girl just got a new best friend! I would also like to thank the Ear to Ear Foundation for asking the Oriental Trading Company for some fun goodies for the kids. Thank you to the Oriental Trading Company for those goodies provided and the kids loved them.  Thank you! I will always remember the experiences these picnics provide.  I can’t tell you all how very nice it was to finally meet everyone, watch the kids play together and have fun, see families mingling with medical professionals in a relaxed setting and learning about hearing technology in an unbiased manner. Thank you to everyone involved for helping me find a way to bring Microtia/Atresia families together.

Melissa Tumblin

Founder of Ear Community and the Microtia and Atresia Support Group on Facebook

Happy 2 Year Anniversary to the Microtia and Atresia Support Group (founded on May 20, 2010)…

Hello Everyone,

Today marks the 2 Year Anniversary for our global support group on Facebook, the Microtia and Atresia Support Group.  Our support group has helped thousands of families and individuals around the world learn how to become better advocates and learn about all of their options.  Our support group has become internationally recognized and embraced by medical professionals and organizations around the world.  I look forward to our support group family continuing to grow as we grow.  Thank you to all of the families and individuals who are a part of our support group because without you we would not be where we are today.

Sincerely,
Melissa Tumblin
Founder of Ear Community and the Microtia and Atresia Support Group

Ear Community From the Heart, an article published in the Broomfield Enterprise today

Hello Everyone,

This morning, Sunday March 18th, 2012, a very nice story went out in the Sunday Morning Broomfield Enterprise news paper for our home community.  Joe Rubino (Broomfield Enterprise Reporter) did a wonderful job relaying my feelings and points regarding helping promote public awareness about Microtia and Atresia and how the Ear Community website can help many families and individuals across the world learn more about Microtia/Atresia and hearing loss.

http://www.broomfieldenterprise.com/ci_20191221/broomfield-moms-ear-community-comes-from-heart?IADID=Search-www.broomfieldenterprise.com-www.broomfieldenterprise.com

Thank you!

Melissa

Microtia and Atresia Global Conference Call on Thursday, March 8th, 2012…call in on 1-866-613-5223 at 4:30pm MST

Hello Everyone!

On Thursday, March 8th at 4:30pm Mountain Standard Time (6:30pm Eastern Standard Time) for American and Canadian time zones, I will be hosting a global conference call to discuss Microtia and Atresia through the AboutFace Organization in Canada.  Anyone around the world is welcome to join in on this call if you can dial into a 1-866 number.  This call is FREE to everyone and is sponsored by the wonderful AboutFace Organization.  We will touch on Microtia and Atresia in general, including discussing dealing with public stares and comments about our children, raising our children with self confidence, etc…  Families who have children with additional syndromes/conditions are of course welcome on the call as we all share in similar experiences, so please join us even if your child does not have Microtia and Atresia.  The call will be approximately 1 hour long.

Directions for joining the conference call are below:

Conference Call Dial In Numbers: 1-866-613-5223 or 1-416-204-9354 (direct in Canada)

 

Conference Access Code: 1263325

How Participants Join the Conference Call:

 

  1. Dial the “conference dial in number”
  2. When prompted, enter the “conference access code”, followed by the “#”

By pressing *6 you will be able to MUTE your line to cut out any extra background noise, by pressing *6 again will allow you to speak and unMUTE your line.

By pressing *0 will put you in touch with the conference call operator for help

I wish to thank the AboutFace Organization for inviting me to host this conference call and for allowing this call to be a global call for everyone.

Thank you and looking forward to speaking with everyone this Thursday!

Melissa Tumblin

Ear Community is Already Helping Families…

The following “thank you” was posted to our support group wall on Friday, February 17, 2012 by one of our support group members:
“My daughter is 3 1/2years old and for the first time today I feel like we have direction and are getting somewhere with her microtia and atresia. This is all thanks to this group and Ear Community. Melissa, thank you for all the long hours and hard work you put into this. Today Sophia was fitted for a soft band Baha which we weren’t informed was an option until I read about it on here. I was also able to get in touch with a lady at Shriners Hospital in Chicago who made us feel very hopeful about having medpor surgery done which again I did not know about medpor until visiting Ear Community. And, to top it all off, we had the pleasure of having met a lilttle girl with artesia through this site. Jennifer Barr and Melanie have been a blessing!!
With a very thankful heart!”
Melissa Parish Shemanski
Thanks for sharing your experience with all of us Melissa.
Sincerely,
Melissa Tumblin

Our Support Group Reaches More Early Intervention Therapists…

On January 27, 2012, I received a call from an Early Intervention service provider called Chatter Pillar Kids in Denver asking to attend our summer picnic scheduled for July 21st and also inquiring about our group’s new website, Ear Community.  Chatter Pillar Kids is an ideal organization as they provide speech, occupational, and physical therapy including pediatric counseling and psychologists and helpful resources for hearing loss and much, much more!  Thank you ChatterPillarKids for embracing our support group and new website!  http://www.Chatterpillarkids.com

More Interest for Our Support Group Through Helpful Resources and More Parent Advocates…

On January 20, 2012, I was asked by a researcher and her committee of parent advocates if our new website and support group could be included in a new helpful resource guide that will soon be available.  I am not only honored to have been asked for Ear Community to be included in this new helpful guide for parents, but I am also proud to know that more parent advocates are helping and giving back to the community through education and support.  Advocacy is a wonderful thing.  Thank you for including Ear Community.

Audiology Online Embraces the Microtia and Atresia Support Group…

Also on January 16, 2012, I received an e-mail from AudiologyOnline, http://www.audiologyonline.com/, asking to link to our new website when it launches.  What an honor to know that a global audiology organization is excited for our new website and appreciates the passion about hearing loss in our support group.  Thank you Audiology Online for your support!

The Educational Audiology Association Embraces Our Support Group…

On January 16, 2012 I receive a message from an audiologist letting me know that our support group was “spotlighted” by the Educational Audiology Association, the EAA.  This was very exciting news not just for our support group, but we also had over 20 audiologists join our group over the next couple of days.  Thank you for your support EAA!  http://www.edaud.org/

Dr. Greg O’Toole of the UK Embraces Our Support Group…

On December 21, 2011, I received an e-mail from Dr. Greg O’Toole of the UK (world renown Rib Graft surgeon) sharing some information with me including a video of one of his patients, named Ethan, who was born with Microtia.  Thank you Dr. O’Toole for your kind message and for embracing our global support group.  Thank you!

Translate »