Ear Community From the Heart, an article published in the Broomfield Enterprise today

Hello Everyone,

This morning, Sunday March 18th, 2012, a very nice story went out in the Sunday Morning Broomfield Enterprise news paper for our home community.  Joe Rubino (Broomfield Enterprise Reporter) did a wonderful job relaying my feelings and points regarding helping promote public awareness about Microtia and Atresia and how the Ear Community website can help many families and individuals across the world learn more about Microtia/Atresia and hearing loss.

http://www.broomfieldenterprise.com/ci_20191221/broomfield-moms-ear-community-comes-from-heart?IADID=Search-www.broomfieldenterprise.com-www.broomfieldenterprise.com

Thank you!

Melissa

Microtia and Atresia Global Conference Call on Thursday, March 8th, 2012…call in on 1-866-613-5223 at 4:30pm MST

Hello Everyone!

On Thursday, March 8th at 4:30pm Mountain Standard Time (6:30pm Eastern Standard Time) for American and Canadian time zones, I will be hosting a global conference call to discuss Microtia and Atresia through the AboutFace Organization in Canada.  Anyone around the world is welcome to join in on this call if you can dial into a 1-866 number.  This call is FREE to everyone and is sponsored by the wonderful AboutFace Organization.  We will touch on Microtia and Atresia in general, including discussing dealing with public stares and comments about our children, raising our children with self confidence, etc…  Families who have children with additional syndromes/conditions are of course welcome on the call as we all share in similar experiences, so please join us even if your child does not have Microtia and Atresia.  The call will be approximately 1 hour long.

Directions for joining the conference call are below:

Conference Call Dial In Numbers: 1-866-613-5223 or 1-416-204-9354 (direct in Canada)

 

Conference Access Code: 1263325

How Participants Join the Conference Call:

 

  1. Dial the “conference dial in number”
  2. When prompted, enter the “conference access code”, followed by the “#”

By pressing *6 you will be able to MUTE your line to cut out any extra background noise, by pressing *6 again will allow you to speak and unMUTE your line.

By pressing *0 will put you in touch with the conference call operator for help

I wish to thank the AboutFace Organization for inviting me to host this conference call and for allowing this call to be a global call for everyone.

Thank you and looking forward to speaking with everyone this Thursday!

Melissa Tumblin

Ear Community is Already Helping Families…

The following “thank you” was posted to our support group wall on Friday, February 17, 2012 by one of our support group members:
“My daughter is 3 1/2years old and for the first time today I feel like we have direction and are getting somewhere with her microtia and atresia. This is all thanks to this group and Ear Community. Melissa, thank you for all the long hours and hard work you put into this. Today Sophia was fitted for a soft band Baha which we weren’t informed was an option until I read about it on here. I was also able to get in touch with a lady at Shriners Hospital in Chicago who made us feel very hopeful about having medpor surgery done which again I did not know about medpor until visiting Ear Community. And, to top it all off, we had the pleasure of having met a lilttle girl with artesia through this site. Jennifer Barr and Melanie have been a blessing!!
With a very thankful heart!”
Melissa Parish Shemanski
Thanks for sharing your experience with all of us Melissa.
Sincerely,
Melissa Tumblin

Our Support Group Reaches More Early Intervention Therapists…

On January 27, 2012, I received a call from an Early Intervention service provider called Chatter Pillar Kids in Denver asking to attend our summer picnic scheduled for July 21st and also inquiring about our group’s new website, Ear Community.  Chatter Pillar Kids is an ideal organization as they provide speech, occupational, and physical therapy including pediatric counseling and psychologists and helpful resources for hearing loss and much, much more!  Thank you ChatterPillarKids for embracing our support group and new website!  http://www.Chatterpillarkids.com

More Interest for Our Support Group Through Helpful Resources and More Parent Advocates…

On January 20, 2012, I was asked by a researcher and her committee of parent advocates if our new website and support group could be included in a new helpful resource guide that will soon be available.  I am not only honored to have been asked for Ear Community to be included in this new helpful guide for parents, but I am also proud to know that more parent advocates are helping and giving back to the community through education and support.  Advocacy is a wonderful thing.  Thank you for including Ear Community.

Audiology Online Embraces the Microtia and Atresia Support Group…

Also on January 16, 2012, I received an e-mail from AudiologyOnline, http://www.audiologyonline.com/, asking to link to our new website when it launches.  What an honor to know that a global audiology organization is excited for our new website and appreciates the passion about hearing loss in our support group.  Thank you Audiology Online for your support!

The Educational Audiology Association Embraces Our Support Group…

On January 16, 2012 I receive a message from an audiologist letting me know that our support group was “spotlighted” by the Educational Audiology Association, the EAA.  This was very exciting news not just for our support group, but we also had over 20 audiologists join our group over the next couple of days.  Thank you for your support EAA!  http://www.edaud.org/

Dr. Greg O’Toole of the UK Embraces Our Support Group…

On December 21, 2011, I received an e-mail from Dr. Greg O’Toole of the UK (world renown Rib Graft surgeon) sharing some information with me including a video of one of his patients, named Ethan, who was born with Microtia.  Thank you Dr. O’Toole for your kind message and for embracing our global support group.  Thank you!

The Microtia and Atresia Support Group Turns 1.5 Years Old on November 20th, 2011…

On November 20, 2011, our support group turned 1.5 years old!  When founded on May 20, 2010 I was our group’s first member.  Since then, we have grown to have over 2,500 global members (including anonymous members) total.  According to our support group’s Facebook statistics, we have had nearly 1 million post views in the past 1.5 yar period alone and have members belonging from over 45 countries.

Meetings With Cochlear and Sophono…

In November of 2011, I was invited to a meeting with marketing at Cochlear to discuss how Cochlear could help our support group.  We discussed the global picnics and we also discussed the launch of the new website.  Cochlear is excited to help our support group bring families together at our picnics too.  It was a very nice meeting and I appreciate Cochlear also wanting to help promote awareness about Microtia and Atresia through our picnics.  Thank you for supporting our support group and its members and for being there for all of us in trying to help bring all of us together so we can share experiences.  Thank you!

In November, I also had a very nice phone call with Sophono discussing our group’s summer picnics and Sophono is thrilled to participate.  Thank you Sophono for helping me bring families together and learn about “all” of their options. 

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