Melissa and Ally Tumblin talk about Ally’s Act with Congressman Joe Neguse, September 10th, 2025.

FOR IMMEDIATE RELEASE:
Wednesday, September 10, 2025

Contact: Grace Martinez

Grace.Martinez@mail.house.gov

VIDEO: Rep. Neguse Joins Ally and Melissa Tumblin to Introduce “Ally’s Act,” Legislation to Expand Coverage for Specialized Hearing Devices

Washington, D.C. — Colorado Congressman Joe Neguse has once again teamed up with Rep. Brian Fitzpatrick (R-PA) to introduce “Ally’s Act,” a bipartisan bill that would ensure private insurance companies cover osseointegrated hearing devices (“OIDs”), including bone anchored hearing aids (“BAHA”) and cochlear implants. The legislation is inspired by Ally Tumblin, a 16-year-old Colorado native, who was born without a right ear or hearing canal—conditions known as microtia and aural atresia—and requires the use of a BAHA.

After Ally’s insurance company denied coverage of her hearing device, her mother, Melissa Tumblin, formed the organization Ear Community in 2016 to advocate for insurance coverage of these devices to ensure no person is left unable to hear because of private insurance companies’ refusal to provide coverage. Then, in 2019, during Congressman Neguse’s first term in the U.S. House, he received a letter from Ally detailing her circumstances. After learning about her situation and the similar circumstances of Americans living with microtia and aural atresia, Neguse first introduced Ally’s Act.

“The bill is really simple. It is an effort to help Coloradans and Americans ensure that they have access through their health insurance plans to bone anchored hearing devices, which, right now, are not available on the vast majority of health insurance plans under the Affordable Care Act. We’ve got to change it. And really, this bill only came about because of Melissa and Ally Tumblin. It was their story—and Ally’s story—that really helped us conceive of Ally’s Act, and I couldn’t be more grateful to both of them for their courage and their willingness to be a part of the solution,” said Congressman Neguse in a video highlighting the bill.

Watch the full video HERE.

“Bone anchored hearing systems and cochlear implants are the only hearing devices some children and adults can benefit from. When an insurance provider denies coverage for someone in need of one of these hearing devices, the opportunity for communication and to pursue certain careers is taken away. These hearing devices are medically necessary, and it is imperative that private insurers provide access to these types of hearing devices, including the necessary hearing health care that is associated with them. Ally’s Act would ensure fair and consistent coverage for these hearing devices, improving the lives of hundreds of thousands of people,” said Melissa Tumblin, Ally’s Mother and the Founder and Executive Director of Ear Community.

“When a child is denied the ability to hear because of an insurer blocking access to care, that’s not just a policy failure—it’s a moral one. Ally’s Act is our answer. It’s a commitment to every family: your child’s future won’t be decided by red tape. As Co-Chair of the Bipartisan Disabilities Caucus, I’ve made it a priority to ensure our laws are not only inclusive in intent, but effective in impact—for every child, every family, and every ability,” said Representative Fitzpatrick.

The bill is also widely supported by individuals born with microtia and atresia, as well as by medical organizations representing ear, nose, and throat specialists. See what they’re saying below.

“The American Speech-Language-Hearing Association applauds Representative Neguse for reintroducing Ally’s Act,” said American Speech-Language-Hearing Association President Bernadette Mayfield-Clarke, PhD, CCC-SLP. “Nobody should be denied life-changing hearing technology, including implantable hearing devices, and related audiologic services because of arbitrary private insurance restrictions. Effective communication is not only necessary for academic, social and career success, but it is essential to our ability to connect with others. We believe it as a basic human right that should be accessible and achievable for all. This important legislation stands to make a real difference in the lives of people of all ages with hearing loss.”

“American Cochlear Implant Alliance enthusiastically supports Ally’s Act, legislation intended to ensure that Americans have access to hearing implants including cochlear and osseointegrated implants,” said Donna L. Sorkin, Executive Director, American Cochlear Implant Alliance. “Representative Neguse has demonstrated leadership and understanding of the extraordinary value of appropriate hearing healthcare for people of all ages, allowing those who need them to hear to pursue education, participate in the workplace, and enjoy a high quality of life.”

“When patients need osseointegrated devices or cochlear implants for severe hearing loss, insurance denials create devastating financial barriers on top of an already challenging medical condition,” said Rahul K. Shah, MD, MBA, Executive Vice President and CEO of the American Academy of Otolaryngology–Head and Neck Surgery. “We’re grateful to Representatives Neguse and Fitzpatrick for Ally’s Act, which will ensure coverage for these life-changing devices and allow otolaryngologists and their patients and families to focus on clinical treatment and outcomes—rather than battling coverage denials and financial burdens.”

This bill is endorsed by over 55 advocacy, academic, and non-profit organizations, including Ear Community; the American Academy of Otolaryngology – Head and Neck Surgery, the American Cochlear Implant Alliance; the American Academy of Audiology; the American Speech-Language-Hearing Association; the National Rural Health Association; Waiting to Hear; HearStrong; Lemon Aids 4 Hearing; Songs for Sound, Inc; American Tinnitus Association; the Alexander Graham Bell Association for the Deaf and Hard of Hearing; City and County of Broomfield, Colorado; Hands & Voices; Harvard Medical School – Massachusetts Eye and Ear/Otolaryngology; Let Them Hear Foundation; Morgan’s Magical Ears; Educational Audiology Association; Dallas Ear Institute; the Acoustic Neuroma Association; Hearing Health Foundation; Colorado Academy of Audiology; the California Ear Institute; Aid the Silent; HearAid Foundation; New York Eye and Ear Infirmary of Mount Sinai; Microtia and Atresia at Stanford Hospital and Clinics/Otolaryngology; the American Pediatric Surgical Association; American Society of Pediatric Otolaryngology; Michigan Medicine – Department of Otolaryngology; University of Pittsburgh Medical Center/Otolaryngology; the Otolaryngology Department at Columbia University Irving Medical Center; IndoUSRare; Chad Ruffin, MD; Proliance Surgeons; Prader-Willi Syndrome Association/USA Advocacy Committee; Weill Cornell Medical College – Departments of Otolaryngology and Audiology; Hearing Industries Association; Hearing Loss Association of America; The John Tracy Center; Plastic Surgery Department at Johns Hopkins; Association of Medical Professionals with Hearing Losses; the University of Southern California Caruso Department of Otolaryngology – Head & Neck Surgery; University of California San Francisco Medical School/Department of Otolaryngology and Cochlear Implant Center; Johns Hopkins Biomedical Engineering and Auditory Research Department; Johns Hopkins Cochlear Implant Center, Department of Otolaryngology – Head and Neck Surgery; ReconstratA, the American Doctors of Audiology; FACES: the National Craniofacial Association; MyFace Organization; and the American Cleft Palate Association; Lewin Ear Reconstruction; Reinisch Plastic Surgery; Tahiri Plastic Surgery; Nemours Children’s Ear, Hearing & Communication Center; Jacob’s Ride; International Congress on Bone Conduction Hearing and Related Technologies; The American Association for Dental, Oral, and Craniofacial Research.

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Official t-shirts & more are now available in different styles & colors with proceeds going to support our Ear Community Organization! 

* Look for order deadline dates below!*
Order by September 30th, 2025 for Ear Community shirts!
Order by October 10th, 2025 for Lucky Ears shirts!

HOW TO ORDER:
The following are the official links to order microtia and atresia awareness day shirts and more from Ear Community!

1. Click here to order the official microtia and atresia awareness day shirts available through Ear Community. T-shirt styles include the 2025 style Microtia & Atresia Awareness Day shirt, reindeer & gnome shirts for the holidays, Microtia Kids Rock, microtia butterfly shirt & Proud Mom or Dad who know an awesome microtia or atresia kid styles. These styles come in all different sizes, colors, long and short sleeve, hoodies, onesies, zip ups, etc… 
Order deadline is September 30th! *** If you are ordering for a large group and would like to have these shirts shipped sooner for group pictures, please email Olivia at:  Tiny@TinyLittleMonster.com

2.  Click here to order the National Microtia Awareness Day November 9th style shirts or click here to order the National Atresia Awareness Day November 9th shirts. This style comes in a variety of colors, sizes long and short sleeve, hoodies, sweatshirts, etc… Order deadline for both is September 30th! 

3. Click here to order stickers, ribbons, socks, mugs and water bottles, backpacks, leggings and so much more! A special thank you to Priscila Soares for creating these designs to help embrace our special community day and support on Ear Community Organization! Order deadline is October 10th!

Thank you and our community looks forward to embracing National Microtia and Atresia Awareness Day every November 9th!
Ear Community

Ear Community’s first 5k run/walk organized by Alida Proehl in Tremont, IL. (July 19, 2025)

On Saturday, July 19th, 2025, Alida Proehl organized the very first 5K run/walk in Tremont, Illinois for our Ear Community Organization called “Hear Me Run!” This was a very special day for Alida because she wanted to help give back to the community and raise awareness about a rare cause that is near and dear to her heart – microtia (missing ears) and aural atresia (absent ear canals resulting in hearing loss)!

Alida was born with Microtia and Atresia, which involves hearing loss. Alida recently made the decision to have a hearing device implanted that would help her hear better, but her insurance provider denied coverage for a bone conduction hearing implant system, called the Osia System, made by Cochlear Americas. The Osia and other implantable hearing device systems cost nearly $50,000 or more including the surgery for this device. Originally, her insurance provider approved her claim, but then later denied her claim, stating that the Osia was not medically necessary, even though this hearing device was approved by and recommended by her ENT. For Alida, this hearing device is absolutely medically necessary because it would help her hear better since she only has hearing in one ear. When Alida was denied the opportunity to hear by her insurance, she quickly realized how much these hearing device implants mean to someone when they have hearing loss. Alida knew right then that she wanted to raise funds so she could help another child or adult hear if their insurer denied them access to a hearing device or if they could not afford to pay out of pocket for their hearing device.

Once Alida knew she wanted to help give back, she reached out to our Ear Community Organization as a member of our community. She knew exactly what she wanted to do and began planning for and organizing the 5K run/walk in her hometown. From gathering sponsors, to creating her own fliers and t-shirt designs, to speaking on local podcasts to asking the City of Tremont for help – Alida had a plan! Did I mention that Alida is only 20 years old! For months, Alida wondered how many people would show up, worried it would only be a handful of people who would turn out as the race date neared. Finally, on Saturday, July 19th, it was Alida’s big day to bring the community together and she was ready! Alida and help began setting up for the race around 5:30 AM that morning! Alida’s amazing family and friends helped set up the entire course while she focused on some last-minute details. To Alida’s surprise – 161 walkers/runners signed registered for the race! Of course it rained, but for most of the race it was perfect weather!  About 89 people ran the race. The runners had chips on their running bibs, so Alida could see how many actually came to the race. She had volunteers of all ages offer to help, which was so inspiring to see! Alida’s Great Aunt, who is 80 years old, helped pass out water to runners at the one-mile mark! The Tremont Police Department donated their time and services to provide officers to guide runners at intersections! Tremont Rescue had two responders (Megan Harley, Paul Molden & Chief Trent Steiner) volunteer standby for runners during the race, stationed at both the start and finish lines! And, Tremont Area Park District (Bryan Cheek, Director) donated the park pavilion during the race where participants could be sheltered from the rain and where the awards ceremony took place.

One of the highlights of Alida’s day was having two other individuals with microtia and atresia at the race! One of them traveled all the way from Florida to be there! The other Alida had just met a couple of weeks earlier at a restaurant. It meant the world to share this experience with them! Not only was this day so special for Alida and her family and for all of the runners and walkers who participated, including so many from her home town who stepped up to help and donate their time and services, but Alida raised nearly $15,000.00 with her event thanks to registered walkers and runners and other donors, including the runners and walkers who shared about this event asking others to help donate to our cause. Incredible!!!! Alida even had awards made and certificates, including making sure that first place received a special bracelet that was donated thanks to Brad and Kathy of Udry Jewelers! Alida says that she felt truly blessed to have so much support and that this is something she would like to do again! 

A special thank you to Alida – Thank you for wanting to raise awareness about our rare cause – microtia and atresia, and thank you for wanting to help give back to the community through Ear Community! All of your hard work, drive and passion was absolutely incredible from start to finish! You are such an incredible person with such a big heart wanting to make a difference and to help raise funds so no other child or adult has to do without a hearing device. Thank you for everything and for your family who supported you the entire way! Thank you for raising funds for our Ear Community Organization so we can continue to help even more children and adults who were born with microtia and atresia!

A special thank you to to the following who helped make Alida’s work and this event so special and something to be proud of and remember for ever!
Thank you to Alida’s entire family and friends! Especially her mom and dad, Dr. Rebecca Proehl and Dr. Trent Proehl.
The Sponsors who donated to Alida, supporting her and the Ear Community Organization! Funds helped go toward paying for banners, fliers, shirts and other associated fees that helped make this event possible!
Sponsors: 
Peoria Ear Nose & Throat Group, Facial Plastic & Laser Surgery Center, LLC.
Wayne Litwiller Excavating
Tremont First National Bank
Sam Leman Morton Chrysler, Dodge, Jeep, RAM & Fiat
Sam Lemon BMW of Peoria
Beccham’s Market, Inc.
Louisa Jane, Inc.
Kouris Pub
Lighthouse Buick
Debra & Brad Barnard
Kevin & Valinda Ulrich
Jason & Amanda Proehl
Patricia & Rick Vance
Robert & Beverly Herrin
Michael Lynn
Jeff Paternoster with ShaZam Racing through Race Roster for helping make Alida’s 5k easy to manage and a complete and total success all around!

Alida, thank you for hosting and managing this unforgettable 5k run/walk for our Ear Community Organization! Your “Hear Me Run” event will always be special to me and to our organization as our very first run/walk event ever! This is something that I could have never managed to put together and or had the time to organize, but YOU did and you did an exceptional job! You are special to Ear Community, to the microtia and atresia community and to me, Alida! Thank you for working so hard on all of this! You are nothing short of amazing, Alida! You are truly an inspirational person and I just know you are going to do incredible things in life! I, along with Ear Community are grateful for you, Alida! Thank you for giving back to the community and for supporting our cause. This was a wonderful way for you to shine a light on our rare cause by making it such a beautiful day for so many!
Thank you, Alida!

Melissa Tumblin
Founder – Executive Director
EarCommunity.org

The Ear Community Organization has watched our community members, children and adults, continually be denied coverage by their insurance providers for bone anchored hearing devices. It saddens our community when the opportunity to hear is taken away and not supported as something that should be provided when we pay into our insurance premiums. This is why Ear Community has Federal Legislation in place known as Ally’s Act, H.R. 4606, that would close the loophole when insurers deny bone anchored hearing devices and cochlear implants. Ally’s Act would provide fair and consistent coverage for children and adults from birth to age 64, preventing another individual, like Alida, from being denied the opportunity to hear. We are asking everyone in every state to please email, call and write to your Congressman at their Washington DC office, asking them to co-sponsor Ally’s Act, H.R. 4606. Please visit the Ear Community website for template letters and details on how to advocate for this piece of legislation. We want Ally’s Act to pass because no one should ever have to fight to hear!
Link to Ally’s Act page:  https://earcommunity.org/about/allys-act-h-r-5485/

Please print and mail the following 1-pager, list of endorsers and fact sheet when you ask your Congressman to cosponsor Ally’s Act, H.R. 4606:
Ally’s Act 1-pager
Ally’s Act list of endorsers
Ally’s Act fact sheet

Wyatt Sclafani, Fall 2025 Ear Community college scholarship recipient.

Congratulations to Wyatt Sclafani for being one of our Ear Community college scholarship recipients this year!

Wyatt was born with unilateral microtia and atresia of his right ear and lives in Belmont, Massachusetts with his family. Wyatt grew up playing football and rugby during school and has become quite the start athlete at his high school. Being involved in athletics where he can be competitive with others who have sports in common has helped him fit in and make lots of friends. Wyatt says that “The last four years have been some of the best hears of my life.” Wyatt was able to win the Middlesex League Campionship alongside his football team, which he says hadn’t been done since the 1960’s. He also served as a team captain for his football team and even traveled to Italy to play for the Belmont Rugby Football Team this past April.

Wyatt also knows what it is like to be a part of community when it comes to microtia and

Wyatt Sclafani, Ear Community college scholarship recipient for Fall 2025.

atresia. He and his family have hosted (2) Ear Community picnics over the years in Boston where Wyatt has enjoyed being a role model for others in the same situation. Whether he is on the field or volunteering with the community helping someone realize that they are not alone with whatever challenge they have, Wyatt has learned to be a role model in many ways. At the Ear Community picnics that Wyatt and his family have hosted over the years, he has enjoyed speaking with others in our community and also being there for the younger kids. At our organization’s last picnic in Boston, a little boy traveled to our picnic just to take a picture with Wyatt so he could show all of his friends at school that he knows a cool kid because he was struggling with friends. Wyatt was happy to take a picture with this little boy and helped make his day in addition to helping him realize that he is not alone with microtia and atresia! Wyatt is attending Nichols College in Dudley, MA where he will be playing Division 3 football for Nichols College! Wyatt plans to earn his degree in business & marketing!

Wyatt, you have a bright future lying ahead for you in both school and in sports! We are excited to see where football takes you and we just know you will do amazing things with your degree in business and marketing!

Thank you and good luck from our Ear Community Board of Directors!
Melissa Tumblin
Founder – Executive Director
Ear Community

Mya DeAngelis, Ear Community college scholarship recipient for Fall 2025.

Congratulations to Mya DeAngelis for being one of our Ear Community college scholarship recipients this year!

Mya was born with unilateral microtia and atresia of her right ear and has Goldenhar Syndrome. She lives with her family in Lincoln, Rhode Island. Mya is an honors student who graduated with a rank of 30 out of 245 students. She played tennis for all four years of her high school career and was also part of the mock trial club and the club for change. While she enjoyed being competitive, one of her favorite things she was a part of during high school was being a member of the club for change because it is a group that gets together to foster positive change in the community.

Mya comes from a long history of family being involved with construction and skilled trades. Her great grandfather was a mason. Her grandfather was a master electrician and her dad has carried on the tradition as a master electrician as well. Mya remembers that during holiday breaks and summer vacation, she would go to work with her dad on various projects and has realized the satisfaction behind completing a project from start to finish. She also appreciates knowing how many people of various skill sets and backgrounds come together to complete a job.

Mya will be the first of her family to attend college & she is very excited to carry the torch from her family history of electricians, masonry experts & construction professionals! She is attending Wentworth Institute of Technology in Boston & is looking forward to earning her degree in Construction & Project Management!

We are excited for you to build an incredible future for yourself and to build incredible places for so many others as you utilize your skills in construction and project management, Mya! Congratulations! Our Ear Community Organization and our community are proud of you! Do great things, Mya!

Thank you and good luck from our Ear Community Board of Directors!
Melissa Tumblin
Founder – Executive Director
Ear Community

Joshua Gorlin receives Ear Community college scholarship, Fall 2025.

Congratulations to Joshua Gorlin for being one of our Ear Community college scholarship recipients this year!

Joshua was born with unilateral microtia and atresia of his right ear and lives in New York. Ever since Joshua was a child, he has loved music! He had dreamed of being a music teacher for years! In elementary school, Joshua began noticing that he hears differently and would sit in the front of the class to ensure he could hear the teacher. He says looking back, he remembers that the other kids would laugh at him or make jokes, but there was always one place he felt like the other kids and that was in the music room!

When Joshua was a child, he attended one of our Ear Community picnics with his family so he wouldn’t feel so alone, which helped instill a newfound confidence in him that he wasn’t the only one missing an ear & there were others just like him! With his love of music and knowing he wasn’t alone now, he found a home with the band at school over the years, fitting in better. Over the years, Joshua became even more confident being cast in roles in drama and theater performances, discovering these and music as outlets to express himself. He began realizing that he enjoyed standing out not because of his he had a disability and was different, but because he was recognized for his strengths! Music has become an important part of Joshua’s life and he enjoys having the opportunity to bring joy to others whether it is performing through jazz combos at venues in restaurants or singing in the local church choir or just singing Beatles songs on his guitar or the piano with his grandmother. All of this has pointed Joshua in the direction of working toward a career in music!

Joshua is very involved with his community and at school including being the Vice President of the Tri-M Music Honor Society, Treasurer for the Monroe Woodbury Drama Club and playing string bass in the Chamber Orchestra. He was also selected for the State NYSSMA All-State Mixed Chorus in 2023 and 2024 and for NYSSMA All-State Vocal Jazz in 2025. So, for Joshua, his dream of becoming a music teacher is the perfect pairing of using the joy of music to encourage students to overcome their obstacles and differences and find what makes them unique! Joshua will be attending Fredonia State University in NY earning a degree in Music Education & Theater! He looks forward to becoming a music teacher!

We just know that Joshua will make an incredible music teacher and we bet he will definitely be a favorite teacher for so many of his students over the years! Congratulations, Joshua! Our Ear Community Organization and our community are proud of you! We know you will go on to do many great things!

Thank you and good luck from our Ear Community Board of Directors!
Melissa Tumblin
Founder – Executive Director
Ear Community

Ear Community & Vanderbilt microtia & atresia collaborative event. Pictured from left to right (front row): Hannah McManus, Emily Rebula, Dr. Filipina Schnabel, Melissa Tumblin, D. Jason Park, Dr. Shi Yang. (back row): Scott Fiscus, Dr. Brandy Stephens, Dr. Marc Bennett & Dr. Scott Stephan.

The Ear Community Organization & Vanderbilt University Medical Center have been hosting a collaborative microtia and atresia event together for nearly a decade now. “This event is incredibly special to the Ear Community Organization,” says Founder, Melissa Tumblin. Ten years ago, Dr. Ron Eavey (past Chair of the Department of Otolaryngology-Head and Neck Surgery & Director of the Bill Wilkerson Center) recruited Melissa to help launch the first all options microtia and atresia clinic in Nashville after seeing the events hosted and the difference being made through Ear Community. “Vanderbilt has always had a special place in my heart for our community and we just love bringing everyone together in Nashville,” Melissa says. “The next conference and picnic is planned for the summer of 2027!”

Following this year’s conference in July, Melissa shared about receiving many messages from families saying that “their hearts were full after our special day! This event is like a family reunion! Tears of joy & families feeling relieved that they are no longer alone w/microtia & atresia is priceless to see! Families have the opportunity to hear straight from the doctors from the clinic as they help provide the answers they are looking for, including the chance to learn about all of their options for microtia and atresia during educational presentations. Melissa shared “how special it is to see the children & adults w/microtia & atresia at our event connect & share experiences together! This is such a special time, helping so many of our community members find more confidence & hear about other’s perspectives. My daughter, Ally, is also enjoying our events in different ways now that she is older & seems to be more open about sharing about her experience too as a teen w/microtia and atresia.”

Melissa and Ally Tumblin with picnic host, John Melson.

Each year, Melissa selects a picnic host for the conference and picnic with Vanderbilt. This year, John Melson, was our picnic host, who is also a Vanderbilt patient. We are grateful for John sharing his journey with all of us, living with microtia and atresia! In 2018, John decided to have a Medpor ear reconstructed by Dr. Scott Stephan when he was 26 years old. Shared stories like John’s matter and are important for others to hear the different decisions that others make. We are thankful for John sharing with us that it’s okay to make decisions as you go along your journey w/microtia! This really helps others to hear different people’s perspectives and to realize that there is time to make these decisions and when you are ready. John also shared how he and his parents almost made the decision to have surgery when he was a child, but they did not go through with it. He is happy he waited he said! John also was a panel member on the parent/patient panel for Vanderbilt during the conference. John’s beautiful wife, Sarah and children Jesse and Blake joined, including his parents Liz and Jared, all traveling from Pennsylvania to be with us on our special day.

The Vanderbilt University Medical Center microtia and atresia clinic.

The Vanderbilt Microtia and Atresia Clinic would not be the top notch medical resource it is without the incredible group of medical professionals that make up this home for our community members. I am grateful for all of you! Thank you to Drs. Scott Stephen (Chief of Facial Plastic and Reconstructive Surgery), Dr. Brandy Stephens (Pediatric Audiologist), Dr. Marc Bennett (Assistant Professor of Otolaryngology-Head and Neck Surgery & Director of Quality and Safety), Dr. Shi Yang (Otolaryngologist & Assistant Professor, Facial Plastic & Reconstructive Surgery), Dr. Jason Park (Assistant Professor in Pediatric Otolaryngology – Head and Neck Surgery), Dr. Filipina Schnabel (Pediatric Laryngologist, Nurse Practitioner & O-HNS Surgeon) & Scott Fiscus (Anaplastologist) & Hannah McManus (Facial Plastics Patient Care Manager) for an educational & wonderful day bringing our community together w/Ear Community!

Thank you to Ear Community’s Platinum Sponsors for helping make our special day possible & for educating everyone on the latest bone conduction hearing device systems! Thank you for your continued support to our organization & to our community!
Platinum Sponsors
Cochlear Americas
MED-EL
Oticon Medical

Thank you to James Hermsen for being a part of our Ear Community events and for helping our microtia kids be able to wear glasses that stay up when you are missing an ear or 2 & for being able to give away glasses to every child at our event through Pax’s Eyewear Fund, made possible by the Gross Family Foundation for Ear Community! Our entertainment was top notch & wow did the kids LOVE Sunday the bunny! 🐰 Thank you to Jim N’ Nicks for another delicious BBQ for everyone!

Thank you to beautiful Noelle McFarland for singing for us! Thank you also to Ear Community Board Members Alex Lang, Noelle McFarland & Chris Bowman for being w/us in Nashville!

Thank you again for such a wonderful day for so many in our community! It’s always heart warming to see so many new & familiar faces!
Here are some wonderful memories from our Vanderbilt & Ear Community microtia & atresia conference & picnic that took place on July 26th, 2025.
Melissa Tumblin
Ear Community

Sean Callinicos (Sonova), Ryan Shuman (Ear Community), Keesha Pfeiffer (Cochlear Americas) and Hilary McManus (Oticon Medical) advocate for Ally’s Act, H.R. 4606 in Washington, DC during the 119th Session.

Ally’s Act, H.R. 4606 was introduced again on July 22nd, 2025. Before our bill was reintroduced during the 119th session, Ear Community and some of our endorsers and advocates were already hard at work advocating in Washington, DC on May 2nd and during July 8th, 9th and 10th of this year! Ally’s Act, H.R. 4606 is a small but focused bipartisan bill requiring private insurers to cover bone anchored hearing device systems and cochlear implants for children and adults from birth to age 64. Bone anchored hearing systems and cochlear implants are the only hearing devices some children and adults can benefit from due to having specific hearing loss types, making them medically necessary.

Sean Callinicos and Ryan McDevitt advocating for Ally’s Act, H.R. 4606.

These implantable hearing devices are NOT traditional hearing aids and cost tens of thousands of dollars. Insurance coverage is unpredictable and inconsistent. Of the half million people who require these hearing devices, approximately 200,000 are abandoned by their insurance, needing the critical coverage this bill ensures. Ally’s Act is a narrowly targeted yet deeply impactful bill that is much needed and would make coverage consistent!

A million THANK YOUS to our Advocacy team that included our lobbyists (who have donated their time and services to advocate for our bill) and to our endorsers and advocates (who also donated their time) for sharing their stories! Thank you for your continued support, your passion and determination to continue championing this bill toward passage! Your willingness to advocate, sharing personal stories of why bone anchored hearing devices and cochlear implants matter to them or to their children and the need for private insurers to cover these devices, matters! Advocates in our group during this last Fly-in included parents of children who benefit from these specialized hearing device implant systems, to adults who personally wear these devices allowing them to have the careers they dream of, to the very hearing device manufacturers who consistently see customers denied coverage by private insurers for these hearing devices. Thank you to everyone who came together to advocate recently and to those who will continue to champion our bill and help educate why Ally’s Act is needed. Your voices are what is needed in order to educate why Ally’s Act is so important!

A very special thank you to the following advocates:
Thank you to Sean Callinicos of Sonova for all of your help with Ally’s Act over the past 4 years. Sean has been ranked as one of The Hill’s top lobbyists over the years and we are proud to have him championing Ally’s Act with us! Thank you to Ryan McDevitt of Bristol Myers Squibb for not only leading many of our meetings with his experience in public affairs, but as a father of a child who would benefit from the services under Ally’s Act – Thank you, Ryan, for fighting for children like Brooke and Ally! Thank you to Ryan Shuman for leading our efforts as our Government Affairs Advisor for Ear Community during our Fly-ins this summer and for helping give us the opportunity to have our voices heard when meeting with Congressmen and Senators in DC! Thank you to Bridget Dobyan of the Hearing Industries Association for helping us advocate and for sharing your own personal journey as a bone anchored hearing aid user and how your career depends on hearing! Thank you to Keesha Pfeiffer of Cochlear Americas for advocating for the hearing device industry, but for also advocating for your son, Josh, who also depends on a bone anchored hearing device just like Ally and Brooke. Thank you to  Dr. Hilary McManus of Oticon Medical for advocating as an audiologist who understands why these hearing devices give people their lives back, but for also advocating for so many with hearing loss who are at a loss when insurers deny coverage for these hearing devices. And, thank you to Valerie Eastwood of MED-EL for helping us advocate as an expert attorney over quality and compliance for these hearing devices, seeing how often they are denied for those who need them most!  Thank you for advocating for all of the children and adults who are denied the opportunity to hear when it comes to lack of insurance coverage for these specific hearing devices.

We are asking the community to please write to, email, call and schedule a meeting with your Congressmen asking them to cosponsor Ally’s Act, H.R. 4606. We want Ally’s Act to pass! For more details on how to advocate for this piece of legislation, visit Ear Community’s website here. We ask that you write a personal letter to the DC office location (templates are on the website) and include the Ally’s Act 1-pager, list of endorsers and fact sheet. Please follow up with a phone call 2 weeks later to the DC office of your Representative.

Here are some memories captured during our Fly-ins on Capitol Hill so far this year!
Melissa Tumblin
Founder – Executive Director
Ear Community

Meet Daxon! Daxon is five years old and was born with unilateral microtia and aural atresia and lives in New Brunswick, Canada! He is one of the many children who was born during Covid-19. To Daxon’s parent’s surprise, he was born without his right ear. Even though Daxon is your typical five year old who is full of energy, he has been struggling with his hearing over the years.

When Daxon’s mom, Felicia, learned more about his conductive hearing loss, she realized he was struggling to hear. At the time, he was able to receive a loaner bone anchored hearing aid (Baha) from their audiologist when he was just a couple of years of old, but had to return the loaner device after so many months. While Felicia watched Daxon thrive with his loaner Baha, she knew she had to obtain one for him that could be his own. Daxon was then able to receive another loaner device for a few months when he was in preschool and she saw how he would ask for his Baha in the morning before school and how he had developed a routine wearing it. Felicia said “…he would ask for it and wear it proudly.” Felicia then began the process to obtain a Baha through her healthcare provider with her audiology department. To her surprise, she discovered that a Baha was going to cost nearly $6,000.00 CAD. She also learned that her insurance provider would not cover a hearing device for Daxon at this time and only covers (1) surgically implanted device in a lifetime in their province.

After realizing that Daxon wasn’t going to be able to obtain a Baha through their insurance, she and her audiologist, Dr. Chantale Melanson, found our Ear Community Organization with Ear Community’s Board of Directors voting to help Daxon receive the gift of hearing. On June 12th, 2025, Daxon was fitted with his new Baha 6 Max from Cochlear Americas donated through our Ear Community Organization. Thank you to Dr. Melanson of The Moncton Hospital for donating her time and services to program Daxon’s new Baha! Thank you to Daxon’s mom, Felicia, for endlessly advocating to help her son hear! A special thank you to Keesha Pfeiffer, Manager Health Policy Strategy and Advocacy, at Cochlear Americas, for helping Daxon receive this gift of hearing so he can #Hear Now And Always! This request to help Daxon means a lot to Keesha as her son also has microtia and atresia and she has helped our Ear Community Organization for many years with these requests to help children and adults hear! Thank you for helping us with this opportunity for Daxon! “Cochlear is the global leader in implantable hearing solutions, and has provided more than 750,000 implantable devices – more than any other company – helping people of all ages to hear and connect with life’s opportunities.” Since 2011, Cochlear Americas is a proud Platinum Sponsor to the Ear Community Organization, helping the microtia and atresia community. Thank you Cochlear Americas for being a leading company behind the hearing device technology that helps children like Luis benefit when it comes to restoring hearing loss! Children and adults with microtia and atresia can only benefit from the use of a bone conduction hearing device because of specific related conductive hearing loss.

Thank you to everyone for coming together to help Daxon hear his best and to help make hearing possible for him because of the amazing advocates in his corner! We are happy for Daxon to be able to hear so much better! Daxon sure is a cutie! Here are some great pictures from his fitting!

Melissa Tumblin
Founder – Executive Director
Ear Community