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Microtia, Atresia, and hearing loss information and support
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Microtia Picnic Photos
2011 1st Annual Denver, Colorado Picnic (USA) DENVER, COLORADO JUNE 11, 2011 For three months I planned for our summer picnic. I drove around to at least thirteen grocery stores with Ally (when I found the time to do so) and
Hi Melissa,
I am looking into compiling some info, and hopefully eventually get it published, to put info into our local hospitals about microtia and atresia for future parents of little MA babies. My hospital experience and our time at home until we finally saw a professional and got a name for our little angel’s condition was a clueless and scary time. I was hoping you may have some pointers or suggestions about maybe getting this started, or info you feel would be pertinent to include!
Thanks,
Melissa M. and Jamison (LMA)
Hi Melissa,
This would be extremely helpful. I have tried this myself, but it is very difficult to get into hospitals and even more difficult to get them to listen to you. I have run out of time to try with this, but I help in other areas regarding information such as through parent to parent groups and early intervention services now. It would be great to have a brochure that gives steps of where to begin along with options. This is what I had in mind when considering this. Otherwise, I am now focused on speaking at medical professional conferences and such trying to help promote awareness this way. If you would like to discuss it further, I would be happy to talk with you. You can privately send me an e-mail if you would like to at: EarCommunity@gmail.com Thanks! Melissa Oh, and BTW…just love your name. 😉